I mentioned on a Facebook post that I didn't know how long I keep my blog going. My son Dan remotely set up my new PC with the voice recognition software on it so I'm trying my best. Problem I am finding now is that my voice is very weak and sometimes just becomes faint and I have trouble enunciation of my words. Yesterday my voice disappeared when my son Tom called. It kind of freaked me out and I had trouble until I went to bed. I will try keep my blog going is getting more difficult.
I went to the nuerologist for a check before my second infusion he approved me. Number two was a few weeks ago. I expect any improvements but I hope disease progression is slowed or even stopped. My diaphragm number one worry I have now.
I'm having pain in my jaw again further back than before.I went back on medication but seems that my sodium levels are low and so he added a new one called Baclofen. Is has given me some pretty crazy side effects.I pounding sound in my head, weird lights when I blink my eyes and I cannot focus by eyes. The last one is the important one. I am unable to read things until afternoon. I had my blood tested again today. If it showed an improvement I will decrease the dose and add salt tablets.If I cannot read that is a big hardship for me.
