We had beautiful weather this weekend and it made me realize
something. Weekends of great weather are tougher for us then weekend with bad
weather. This seems contrary to common sense because weekends like this last
one are pretty rare. The reason it was hard was because of my MS and it made me
realize what MS is taken away for me. There is very little to enjoy outdoors
now.
Most of the time I’m either in bed or in the living room in
my wheelchair. I can no longer open the door to the screen porch by myself.
Saturday I didn’t get out of bed till after 1 PM. Before MS we would’ve either
gone kayaking, biking or walking. We often would find an area to kayak or bike
in and then afterwards we would wander around some type of shopping area, like
Galena and such. Now with being in a wheelchair none of these things are
possible. Even if I can get in the shops, which is very rare, they’re usually
too congested for me to move around without running into things. This really
limits what I can do and it makes for a very boring time when it shouldn’t be.
Sunday I got up around 10:30 AM. I went outside for a while
and it was very nice and as long as I stayed in the shade. I went out into the
yard under a shade tree and stayed there until the gnats started biting my
ears. This is frustrating because I can’t swat them away or even scratch when they
itch. I have my iPhone with music playing and went into the screen porch with
my wife’s help. It was very comfortable and I stayed out there watching the
trees and birds until about 5 PM. We hesitated to go anywhere because of the
parking problems we normally run into. Actually rainy weekends or cold weekends
or really hot weekends are easier to deal with because we can’t do anything
anyway. This last weekend made me feel the effects of my MS and my mood swings
were all over the place this weekend.
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