Miscellaneous updates:
There is a drug on the market now that it is approved for my type of MS. I called the neurologist a couple weeks ago and I could see him the next day but I missed out due to my inability to communicate quick enough. When I called back to make an appointment May 25 was the soonest he could see me. This is one of the reasons I haven't been to see him since I could no longer work. I saw him regularly so we could track my disability so when it came time for work to end he could fill out the forms. Since my a type of MS has no treatment and every time I call them with the new symptoms that needed dealt with he would refer me to my primary care physician. So when I called they seem kind of put out that I hadn't seen them for so long. One biggest frustrations with MS as been dealing with the neurology department at PCI. They don't seem to think anything is a big deal but they want me to come in regularly.
My wife called them the other day to see if she could get me in to see a different neurologist. They acted like she was out of her mind at asking something so bizarre. Cedar Rapids is not a very big market and so there are not many neurologist that deal with MS. If anyone knows one let me know. I can't say my neurologist is been much help.
This week is been pretty up and down. Wednesday was an awful day inside my head. I woke up in a bad mood and spent an hour dwelling on what essentially is crap. I couldn't shake that mood the rest of the day and could only wait for bedtime so I could go to sleep again. Thursday was a better day. My brother-in-law Mike has been coming over on Thursdays to chat and study a little bit of the Bible. I'm really glad for this. There are times when I try to talk and literally nothing comes out. He is pretty patient. Sometimes it is 5 or 10 minutes before I can get something out.
I'm becoming more frustrated with my voice software. It seems like simple words come across incorrectly like he is often you. Seems bizarrely stupid to me. It's hard to proofread stuff so I know you'll forgive me for my poor grammar. When I breathe it sometime put words in and often inputs in the word will. Seems a strange word to come up with.
I'm working on getting a 2nd PC to use in the bedroom because I can no longer run my iPad. All that its waiting is for my son do set up Smyle Mouse.
Our son Tom is being deployed overseas in June. He is having a chain-link fence put in our backyard so we can have his dog Atlas. Atlas doesn't really need the fence but we're afraid that if he is out there other dogs might come in and who knows how they would feel about him. One of the neighbors tiny little dogs seems to hate him. Not sure why because everybody loves him. He loves everybody to and is never been aggressive toward another animal or person.
I haven't been able to do crossword puzzle on my iPad for quite a while. When I lost that ability I really missed it. Last week I found an app that works on my PC. Now I find I don't enjoy them like I used to. I have a slight each letter using my smile tracking software and then click the letter. I try to do one a day but they do take quite a while. I think I like the iPad app because I can do 3 or 4 a night before I went to sleep. Using the smile tracking software I have to move my head a lot. It is a much more exhausting than just clicking with my finger when I could use my iPad. Well the good part is that I can read Kindle books using the smile tracking software. Pretty easy to turn pages. I can also use it to start Amazon Prime Video. I have been a prime member for a long time and am now using the videos. Lots of movies and a few good TV shows.
I have used H&R Block tax software for about 10 years. Last year I do our taxes with a little from my wife. This year I downloaded it and paid for online. The program worked without a problem when I did this. Then the late March wanted to file my taxes in the program wouldn't open. Their support is chat based rather than an email so I was stuck. I tried all sorts of things like closing programs, uninstalling and reinstalling and other things. Nothing would work. Finally Matt got on their website and used it to file my federal taxes. In the end up costing me another $75 to go this route. I am pretty angry with them and gave them bad reviews. I'm sure they don't really care. I find support on the computer is pretty difficult.
Well I'm going to sign off for now, thank you for reading my blog.
No comments:
Post a Comment