I don't have much good to report as far as my health. MS just keep plugging along few months ago I could move my arms a small amount when I coughed so they moved up on my waist making and coughing a little easier. Now my left arm won't move all in my right is heading that way. The feel pretty pathetic when I have to have someone else move my arm two inches. My main frustration is how much work I am for my wife. Things are not getting easier for in that troubles me because I was supposed to be the one who takes care of her. My neck pain comes much easier because I am laying on my back there is more weight on my head and neck. Some of the meds I gave me help me in the neck area but so far nothing has really helped on the trigeminal. It seems to have settled (hopefully) my right cheek bouncing around between the upper cheek in the lower cheek and many times it is right in that joint of the corner of my mouth. When it is there like now is very painful to annunciate and I slur my speech. Been having some strange pains in my left calf, left ankle and the top of my left foot. Through trial and error my wife has found that Aspercreme with what I call the hot sauce seems to help most. But not is all negative.
My BiPAP machine has not worked well with just the nose mask. For it to work I need to keep my mouth closed which is become almost impossible to do with the trigeminal pain but I am asleep. The machine alarm's because the air just blows feel my nose and out my mouth so it thinks it's not attached. I've been using the full face mask for about a week now and am gotten used to it almost. Until last night, it alarmed again when I had my mouth open. One step forward, two steps back. I can still use Siri if I do it just right and my wife has gotten a baby monitor and that usually wake her up if I call her name even with the mask on. I do sleep better with the full mask so that is good. I have grown a little tired of reading and I found that podcasts of mysteries interesting. I usually bounce between three or four shows and then listened to a podcast or two. Usually fall sleep not long after. Is nice to have another alternative besides reading and watching videos.
I find I still have a lot of phlegm buildup in my lungs. With a full face mask it seems the rest my diaphragm little more than the other one used to so I'm able to cough it up for now though the next MS decrease of my diaphragm. The pressure sores on my bottom are healing. I think the mattress which is special, new seat in my power chair and that I spend a lot less time sitting up are helping. They say the open wound in my calf and ankle getting better but their reluctant to tell me that it will ever close up all the way. I guess will see. One thing I'm always appreciative of his a good night sleep and I have a fair amount of those each week. Some days the aides come and I wake up earlier that I would and so I take a nap in the afternoon. If the nap is not too long it's all have an easy time falling asleep. I think that's it for now and thank you again for reading.
I do appreciate the weekly visit I get from my wife's sister who is retired now. I think she stays busier now than when she worked. It helped me get out of my own head for a while and that is good for me. I don't enjoy being around myself and I do not feel more very pleasant person overall. My wife is so busy I try not to give her extra tasks but she gets home from work the visits are very nice.
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