Phil and Macy

Phil and Macy

Monday, October 3, 2016

MS and my inappropriate speaking. It's hard to get used to this disease!

I am a little worried about posting this because my wife might get mad at me but it is a good example of how MS as affected me cognitively. I have to accept this because it is part of the MS but it is very strange to me how this works and I wish it wasn't so.
Friday we went to a wine tasting at a nearby Winehouse. It was outdoor and accompanied by a musician. Very nice evening but it was a little chilly. I had on a fleece poncho which some people call it cape and one of my sons laughingly calls it a shawl. It is pretty warm and covers my hands so they don't get cold. I was sitting by myself because my wife and her sister went to get another wine sample. A lady came over to me and commented on my poncho how comfortable and warm it looked. I think most people were a little cold not dressing for the weather correctly. I have trouble talking but was able to move my hand a little underneath the poncho and said you can rub your face on it. Since my hand was moving underneath it it was also moving in my crotch area. This is not what I wanted to have happen or to say but that is what came out. She left quite quickly and I felt very embarrassed. What I wanted to do was lift my right arm up by her face and tell her she could rub her cheek on it to see how soft it was. What came out was so different than what I was thinking I'm still embarrassed today.
When my wife came back I asked her to go apologize to the girl in the striped sweater and she says you mean Robin? I had met this girl a few weeks ago at another event there but he completely forgotten. She also worked with my wife and now my wife was embarrassed. I asked her to go apologize because what came out was nothing like what I wanted to say. Robin took a good-naturedly and said not to worry about it. I still feel bad and later one some other lady came over I wouldn't talk except to say hi. I've got to find a way to just keep my mouth shut unless I can get better control over. I wish I could just say oh well it's MS no big deal but I still feel embarrassed in which I just said and done what I wanted. It is still hard to get used to all the effects of this disease which will never get better and will only gradually get worse.

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