Last month it I had mentioned my pain from the trigeminal neuralgia the had returned. Over the interceding weeks it just getting worse and worse until the pain was back to a 10 out of 10 when I drank or ate anything. My wife called the neurosurgeon and they recommended we call my neurologist to discuss medications. The physician's assistant thought that since I had the procedure perhaps I would not need as large a dose of medications and I could avoid some of the side effects that effectively use of my arms. After reviewing my medications that I had we decided to try the Tegretol again.
I have been on it for two days now with much lower dose than before. It is helping the pain so that it is tolerable. I'm still getting the dead right arm side effect so it is very difficult to use my iPads or PC. It is almost impossible to use my iPhone unless it is plugged in and I can say "hey Siri". I will try calling the neurologist Monday when he is not very easy to get into see him. Perhaps he has a better medication for me that won't affect my right arm quite as much. The neurosurgeon did not want to do another procedure so soon after the last one. I think you would've went better if I could have communicated to him during the procedure better. As a worked out I had difficulty speaking and I could not nod my head because of the big needle sticking into my jaw. Communication is one of my most difficult issues with MS.
Thank you for all your prayers and I sure wish this pain could be dealt with without costing me what little movement I have in my right hand. I have never said it until now but this latest trigeminal pain seems unfair. I have tried to maintain a good attitude about MS and had trusted the procedure would work good but now I am pretty disappointed. As one of my friends used to say "too bad so sad". I guess I just need to trust the Lord more. Not sure how I am going to feed myself at breakfast. I might just have to wait until Matt comes to get me lunch.
Of course the most serious issue is that I can't scratch Macy's chin like I used to. It's horrible that this kitty has to suffer because of my MS! Poor poor kitty.
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