Phil and Macy

Phil and Macy

Friday, October 7, 2016

Trigeminal neuralgia update – seven months, not good news.

It has been over seven months since I had my procedure for trigeminal neuralgia. A few weeks ago I started noticing a little burst of what was like an electric shock in my left lower jaw. No real pain but just a little zap. Now it has grown to being painful when I get a zap. It this happens when I drink anything and occasionally while I'm eating. I'm now experiencing some pain after a dozen times a day.
They told me after the procedure, or before, that the nerve may regenerate itself. I think that is happened in my case. Now I have to decide "how bad do I let it get before I contact the doctors again", how long a delay before I call them and they can do it and how is insurance going to look at this?
I'm finding decisions are much much harder to make. I am experiencing more of the cognitive problems that go with MS. Decisions are especially hard and I have trouble following things that I used to be able to follow easily.
Last night was to be a parade for Marion high school homecoming. My wife and I were going to go since my nephew, David, is in the court. Since the rain was supposed to come they change the route and my wife tried to show me on her phone the new route. She showed me the map and I could not pick it up mentally. I ended up not going because the battery in my van is dead again. My wife went.

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