I mentioned I had a neurologist visit on Tuesday.. Matt took me so Janette didn't have to miss work. I went for 2 reasons. One was that I needed to see him for my next infusion and 2nd by trigeminal neuralgia pain is come back in a different place. I will talk about the infusion 1st. I told him I tolerated it well with no side effects. My right hand use has deteriorated so that I could no longer use my right. I do think it has slowed how quickly my MS is progressing. There is no real way to benchmark this so it is just my gut feeling. The reason I think it is slowed is because my breathing seems about the same as it used to be. I'm really hoping my next infusion will clearly slow or stop the progression. Only time will tell and that will not be easy to gauge either.
The other reason to see him was in my trigeminal neuralgia as come back only further back on the same side of my mouth. I had to see him to get an increase in my prescription. A few years ago this medication inhibited what little use I had of my right hand. To avoid taking it had I had a rhizotomy. Now that neither of my hands work in didn't seem to matter to me. He wrote me an increases prescription. I am hoping that works because it I don't really want another rhizotomy. The procedure wasn't really terrible but it took 2 days between the prep work and the procedure. Of course only the future will tell if it works well enough to avoid a 2nd rhizotomy.
This was the 1st time Matt has been able to meet Dr. Krain. After the doctor left I asked Matt if he thinks the doctor is a crazy little guy. He said "oh yeah". Most people either like him or hate him his mannerisms are very abrupt. He really grates on some people. Since I worked with many engineers I don't have a problem with his mannerisms.
He did order a blood test which came back normal other than I have low-sodium. I have to go back two more times to get it checked. I'm not sure what low-sodium means but going back to live to more times means hassle city. Also said my phlegmyy raspy breathing was made worse because the decongestants make thicker so it's harder to cough up. There's less but harder to bring up. I'll try skipping it for a while and see how that goes.
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