It's still MS awareness month and I wanted to say something about the MS society. This is a nonprofit organization that helps people with MS of all types. They do educational publications and occasionally sponsor a speaker. The center of our area is Minneapolis and so these as some of the problems that go with distance. Also Minneapolis is a much larger population base and for a slightly rare disease that makes things better for them in that area. They do help in our area but the larger area is easier for them to deal with. They have to help me individually to find a lift for my van when I could still totter around a little bit. It was electric but I do go to the back of the van, left the tailgate and lower with a button to get my chair. When I advance past that point and needed a different man they really had nothing to help me. I depended more on the Iowa Vocational Rehab for some help with that.
I see a lot of their post on Facebook and just wanted to mention why I don't wholeheartedly support them. They are the best MS support group there is but they lack the top grade that a organization that rates charities gives out. One issue is that they do not publish their financials and so this group has a difficulty rating them as far as administration costs versus charitable help. I understand that if they did open their books they would get a C or B rating. They do help a lot funding MS research and it recently started to tackle Primary Progressive. If you wish to support MS research they are definitely the place to go. I would be much more apt to repost their Facebook things if they at a higher grade of this charitable giving chart.
If you wish to support MS society there are walks and you can give directly and you can feel good that most of the money is going toward the disease. Perhaps not as much as it should but they are still the best that I know of. I got this off my chest now then move on to other things.
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