March is MS awareness month and it is almost over. This will probably be my last post with this theme. Many people are moody but MS takes this to a whole new level. I usually try to be upbeat but many times my mood is awful. Yesterday morning was one of these times.
I woke up feeling really sorry for myself. It really seemed make me feel trapped I can no longer drive my chair around the house. I could no longer go over and look out the window or go out on the porch when the weather's nice. Yesterday this made me feel extremely trapped. As a consequence I woke up in a very foul mood. I try not to share it with my wife but she could tell. Then when my son came I tried not to share with him. Later that afternoon the bad mood disappeared just as quickly as it appeared.
I wanted to share this because I have many very negative days and only try to post on positive days. It probably doesn't help give a clear picture of MS to only post on good days and so I am sharing this with you. Not looking for sympathy, my own self-pity is definitely enough for me.
There is now a medication approved for Primary Progressive MS and I will be seeing the neurologist sometime soon to see if I am a candidate. I'm sure it won't do anything fantastic but if I could get my right hand back enough to drive my chair I think I would be happy. No telling if I'm a candidate or out much this medication costs. Those things would factor into whether I would try it.
I woke up today and would not in a very good mood but nothing like yesterday. Some days all I look forward to is going to bed and going to sleep. It hasn't happened yet but I keep hoping that I will wake up as something really good will happen. I don't even know what it is I want to happen but my wife and I have phase so many disappointments and very little upticks over the last decade or so. Seems somehow they should balance out somewhere along the way.
The positives that I have over the last few years are all about the caregivers and caring friends I have. I really appreciate everyone who helps and cares about me.
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