MS Post – last one in March

Well this is last day of March in the end of MS awareness month. Recently the FDA approved the medication that may help slow or stop the progression of Primary Progressive MS. So I called the neurologist a few days ago to ask about it. He is always told me there is nothing in the pipeline that would help me. According to I read this new drug may help me. So I thought I'd give it a shot and they told me they could see me next day at 11:30 AM. I tried calling my wife but couldn't get a hold of her. She had forgotten her phone and I didn't think it was a big deal enough to call her on her work phone line. Instead an appointment that early I thought I'm sure I can get in quickly unlike the past for his appointments are way in the future. When I called they told me that the doctor hadn't seen me for a long time so I needed to come in.
I haven't been to see him since I was a longer able to work. His appointments were always way into the future and has seemed really hard for me to plan on. He also had never had anything to help me and was pretty negative about my prognosis. Whenever I called with a new symptom he would refer me to I primary care doctor to deal with a symptom. So once I quit working I didn't see a need to see him. I had gone to regularly so that I can no longer work he would have the documentation to support my request for disability.
Now I called and expected to be only get in quickly. I found out that the 1130 the next day he told me about this due to a cancellation and the next available was May 25. Back to the same old story. I don't have much hope for this new medication both see him anyway. He is always been a Negative Nelly so I expect to find out that I'm not a candidate either because I'm too far gone for some other reason. I also got a waiting list in case there is a cancellation. Who knows when I will see him. Who knows if the new drug is even useful for me. That's what my MS is all about it's always "who knows".
I have to say I've been pretty grumpy this week. I think it's because the more I discussed my MS the more I think about it. I found thinking about it is useless and I didn't do do best if I just forget about it and live my life best I can. I'm not sure when I'll go to the neurologist but if I go before May 25 of let you know what's going on. Thank you for your care and prayers.