Phil and Macy

Phil and Macy

Tuesday, July 25, 2017

Breathing machine ups and downs

There are so many ups and downs in life and with MS there seems to be a few extra. Yesterday afternoon the breathing machine lady came to ask how it was working. My wife brought it into the living room and we went over all was working (which is pretty good). I told her I had one problem that initially and putting it on it puts my breath a little too hard and the access would come out of my mouth. She showed my wife out to ramp it down which would stay that way for 20 minutes and then revert back to what the doctor had her begin with. At sounded good. It was working fine on the battery while was in the living room. It has a 5 hour battery backup.
That night when my wife put it on me it wouldn't work and Telling of a fault that it wasn't plugged in to power. It clearly was plugged in and she even tried plugging in an to a different outlet to make sure. So my last night without it which is a catastrophic but for somebody who required it to breathe it would've been a huge problem. I think she was going to call the lady today and tell her the problem. I kind of missed it and it definitely helps me sleep and gives my diaphragm I needed rest. Hopefully it will get figured out pretty soon.
I had a very strange thing happened when I was asleep. When I woke up I found my right here is not hearing very well. I've never had this happen except when it was full of water. I don't think it can be that since I haven't been in water since Saturday. Just one more thing to either ignore or go to the doctor for. It's a real hassle to make an appointment and have my wife miss work to take me. I tend to just muddle through and avoid the doctor visit. My doctors are pretty good but when it's hard to figure out the neurologist says go see your primary care physician in the primary care physician asked what the neurologist said. So I just try to wait and see if it would get better on its own. Not sure if this the best but it's how I deal with things.

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