I couldn't post yesterday because I forgot to have the TV muted. My wife was able to get my breathing machine working. She got a few ideas from the breathing machine lady but when they came right down to it she doesn't know what she did to get it going. I told her that's how I often think things in years past. I just take things apart and fiddle around with them and when I put it back together somehow it works. I can't believe all use to it I have become in just a week. I especially noticed that in the mornings.
I like the page that pertains to the new drug for MS that I am working toward. It is on face book. I might have to turn it off my newsfeed because there are so many posts is ridiculous. I'm glad for the information but I had to quit reading all of them because it just took too much time. The number 1 side effect seems to be fatigue for days after the infusion. The number 2 seems to be itching in the years ahead during the infusion. They give you Benadryl and that is when I take because I have MS itching now when I go to bed. Hopefully I won't have that problem or my wife will be on scratching duty during the infusion. I will have to remember to take the scratching do Hickey I bought a long time ago.
Well I can't think of anything more to post about MS lately. I did read a headline on Facebook from the MS site the talked about looking for the silver lining in MS. I would say categorically I find no silver lining. MS socks and anyone who tells you different is just sharing wishful thinking. I have learned things I wouldn't have without MS but honestly I don't find any silver linings at all. I have learned to appreciate my wife and other caregivers but I would not call that a silver lining. I wish I can do some of the things for myself and I feel like a burden. So you silver liners out there please poke yourself in the eye with a sharp stick! That's humor if you cannot tell.
I didn't think of something else about MS. I think perhaps I'm going a little bit stir crazy. Don't just a minute ago I thought today was Friday. I sent an email talking about trying to go to listen to music. Since I thought it was Friday today I put in the email, music tonight. I realized today is Thursday.
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