Am getting a little impatient about my Ocrevus.. This week I have a booster for the hepatitis vaccine. We don't have a clear answer on when I will get my 1st infusion but I'm ready to go. I'm really hoping to get a roll back so that my right hand and arm start working again little more. Maybe it will be a miraculous cure and I'll be able to get out of my share (yeah right I think that too much to hope for). I have read a few things on Facebook and some of the reactions are significant but not severe and some of them are nonexistent side effects. One guy he was pretty funny and his dog barking in the background and he said he hoped infusion would help his dog with barking at everything. As one of the reasons I want to drive my chair again. Atlas minded me better when I can drive over by him and scold him from above. Now he kind of ignores me and that's is to get a treat off of my lap table. Then the years me pretty good.
Last night he came in and laid with his and on my shoulder for about an hour. Last night and the night before the cat game in and we had both of them cuddling with us. It's always sweet when they both are affectionate.
I've use my BPAP machine for 4 nights now. It is powerful enough that it does my breathing for me and rest my diaphragm. 3 of the 4 days I had enough mojo clear the phlegm out of my lungs. One day I coughed all day though it could never really get the phlegm out. 2 of the 3 nights I can use my smile mouse and turn the pages of my Kindle books. 2 nights it worked okay and then just quit. Not sure why. I did up going to sleep early those nights.
Always find out a significant negative about our well marked insurance that we have to my wife's work. We thought it was a $2500 per person deductible. We thought I had met my $2500. My wife is been online check to make sure and she found out that it is $5000 deductible for both of us together. So my breathing machine won't be paid for by insurance Ike we thought. Oh well nothing ever seems a break our way with insurance. The cost just keep going up and up the.doc couples go up and up and our co-pay goes up and up. Seems hard to believe all 3 facets would go up at the same time. It's not cheap be and sick. I can see why some people go bankrupt.
Well the little girl I had mentioned a while ago that had liver cancer had a great turn and her situation. One day she was supposed to start chemo again because the cancer and come back and was in stage IV.. 20 minutes before the chemo would start she got news that a transplant series of mortgage were available. She ended up needing her lever and 2 other ones at the same time because the connections to her liver were cancerous. She is at some ups and downs waiting to see if the organs were accepted or not and after a roller coaster ride her body is excepting the organs. Sure hope for a great outcome. She is up and walking now even though she is on an IV. She is the wonderful little determined 3-year-old. I call
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