MS – Strange Journey

Since this is a MS website I probably should post about MS once in a while. As you know I have primary progressive MS which is supposed to advance very slowly. In my case so it has gone farther and faster than anyone expected. There were other people in my MS support group with the same type and 10 years later there pretty close to the same as they were when they came. The doctor told me I was "atypical". Thanks Doc. So I'm essentially a quadriplegic as far as use of my appendages. Unlike spinal cord injury quadriplegics I can still feel things in my legs and arms but it is a little less than before. A person with a spinal cord injury must be very careful to avoid freezing or burning because they cannot feel that. In my case I can feel and I know when I need to get away from hot or cold. I do have some unique symptoms that seem very strange to me.
And I sit for long periods of time or where I am in bed I lose track of my appendages. Sometimes it feels like my knees are drawn up and that I look they are still out straight. Most of the time though it could tell where my legs are. My hands so seem very strange. After I'm in bed for a while it feels like my arms are floating of footer show above my body. Once I dreamed that I am scratching the kitty's chin and I wake up and my arm is still down on my leg under the covers. I lose track of my left hand when I'm in my chair for a while. Without some sort of restraint both of my and then arms are drawn toward my body and gets very uncomfortable having them in one position all the time. I have a cup that is Velcro held onto my lap desk which is held on my chair with Velcro. This cup keeps left hand away from my body. When I sit there for a while it feels like my left hand is against my body even though it is held away by the cup. This seems very strange to me.
I am not posting this looking for sympathy but just thought it was interesting and maybe you find it interesting also. Among my many symptoms these are not really very significant but did show how odd this disease can be.
I often complain about my voice software but it is more involved than just the software. I have trouble enunciating because of the numbness on the right side of my face. I also use the microphone is built into the PC. I used to have a standalone microphone that work much better. I quit using it because it blocks the speakers on my PC when it is plugged it. I did some research and found out because this PC is so small there is a sound chip rather than a card and so there physical limitations. If I use the standalone I am locked out of the speakers. I had to pick one or the other.
I have complained about my eyesight and went to the eye doctor a few weeks ago. My prescription is not changed so my difficulties in seeing what I dictate must be related to the gooey stuff I get in my eyes. I should be able to rub my eyes or pick this stuff out but can't anymore and that is my sight problem. When I read back what I've dictated I feel like an illiterate buffoon. Sometimes I have to remember what Popeye said "I am what I am and that's all that I am". Of course he said yams instead of am.