Phil and Macy

Phil and Macy

Wednesday, September 5, 2018

The blues MS style

Will I have not posted much lately. I've really been struggling with the downward effects of my MS. Is hard to get used to the idea that nothing will ever get better only worse. Especially my breathing. I have a lot of phlegm and am now having a lot of problems coughing it up. I cough for hours on the same staff and it takes a long time to cough it up. I cough on the same stuff for hours. It wears me down physically and mentally. Doctors have no solutions. It is just part of my MS. I used to have a positive attitude but lost that when my right hand but working and I became a full quadriplegic. I feel silly having optimism when I should've known nothing would ever get better. I am still struggling with my trigeminal neuralgia medication. I keep hoping I can get off it begins is screws up my eyesight. The doctor also says it lowers my sodium level to problematic levels.
I have gone from a positive attitude. I have been sad, discouraged, impressed and now I am just brokenhearted. I find our new cats and dog entertaining. None of them have attached himself to be likened Macy did. I know she was one-of-a-kind but I had hoped to get some affection out of these new ones. I think Lacey said toward cuddling with me until Jordan moved in. Jordan cannot stand another animal getting attention and sleeping on the bed. She chased the cat off and she hasn't been back since. Jordan does encounter with me either. So basically I am mostly brokenhearted and don't see ever coming out of it. It is probably better than when I was depressed because I shared that over and over by loved ones. Depresses me that I keep adding more and more things my caregivers to d will o. I will let cool can no longer do anything for myself except use smile mouse on my PC. I can read books and load up prime videos for Q3 pretty busy bad.
Now I have found out that I have pressure sores sitting in my chair. The wheelchair guy came yesterday and warned me that a pressure sore group of doctors will probably tell me lay on my side and not get in the chair. When I am on my side and can do nothing so I'm not looking forward to that. The benefit will be that hopefully my wife does not have to dress by would twice a day. Well I need to go now I'm running out of energy. Take care dear reader.

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