Two other areas I should mention is the decrease in my trigeminal medication I'm trying to wean myself off of. We also had a frank discussion with the staff at wound clinic about difficulties functioning it is I get worse I still need to be alone as my caregiver must work for insurance reasons as well as income. I have gone from 10 tablets (200 mg) a day down to three now. I've tried getting down to three in the past being too aggressive thinking that my radiology treatment is advancing but I have to wait. Each time I've gone to three pain came back like gangbusters. I've been on three which is one every eight hours. Since Monday and so far the pain has not come back. I hope this holds out. So many times since I have been diagnosed with MS that I said "at least this or that still works" find that within a month or so that is gone and I have to adapt.
The other area discuss that we were able to have a frank discussion with the nursing staff and the doctor at the wound clinic pertaining to how difficult things are getting for me and I wish I was out of this body. They were very helpful one of the nurses used to be a palative care nurse and new how to maneuver in the system as well as having contact people she knew. Earlier this week we met with a nurse who work in that field for the hospital we use. We were able to get on file my medical wishes and that goes through their entire system. She was very helpful and will meet with a social worker that she put us in contact with probably next week. So I'm getting pretty worn out and will sign off. Again God bless you dear reader. PS, I didn't do myself any favors this morning. I had my wife positioned me before she left and I am off to one side and this is messing up my smile mouse. The cursor is jumping allover and clicks where I don't want to. Also won't click where I wanted to. It is difficult fighting the voice software as well as the cursor jumping over. Once again take care and God bless.
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