Phil and Macy

Phil and Macy

Thursday, October 4, 2018

Sort of a health update (part one)

I went to the wound clinic yesterday. The spread of the fungus under my skin has been arrested but the actual pressure sore has gotten worse. The doctor is a very soft spoken lady and shared one insight into my future with these type of sores. There was a nurse there that used to be a pallative care nurse. She told us that each doctor could only focus on on their particular specialty. There were going to contact my family doctor (primary care) and suggests some things. The wound specialist said that due to my poor circulation and always needing to be either in the chair or laying on my back in bed, this would may not heal and pressure sores were going to be a problem going forward. I found this somewhat disheartening. I never imagined this particular problem in those terms. Her and the nurse mentioned that circulation problems would need a cardiac doctor which I have not seen yet and don't know if I ever will. Right now my circulation problems are wounds that don't heal well, my feet swelling some when I'm in my chair and cold hands and arms even if it is warm. They don't know why but my legs and ankles do not swell up. Compression socks do not have my feet only my ankles and legs. I tried them years ago and they really didn't do anything for my feet.
So to sum up some things my doctors have told me over the last couple years that are disheartening are these: my neurologist in answer to a question I had about how MS people die have MS (a been told for years that MS is not fatal) he said that the only way people die directly from MS is due to a weakened diaphragm so that one is not able to breathe. He said this afflicts me and I'm a candidate to do that type of MS I have. I asked the question in my wife was pretty upset with me for asking. That was early this year. The pulmonologist (of whom we were very disappointed with) said that my MS will probably need me to stop breathing and when I quit breathing I would die. He volunteered this and when I asked "soon" somewhat eagerly he started mumbling and babbling that with MS could be years and no one could tell. The asked if I had a DNR and I said yes. He asked if I would ever want to be on a ventilator and I said absolutely not. That was earlier this year also. I don't remember which doctor that due to my breathing week this I would probably be subject to the risk of pneumonia. Now the wound doctor tells me I will have problems with pressure sores more or less with the rest of my life. That is four dings out of four. That brings up bit of sadness that I will share later. My voice and software are acting up and I will have to sign off. I hope I'll be able to post some of my life philosophies that I got when I was young and so hold onto while being a Christian holding those values. Right or wrong it will be what I have.

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