Phil and Macy

Phil and Macy

Monday, February 6, 2017

MS Status Update – early February 2017

I have kind of lost track of what I have posted the latest update on my MS condition. Part of this is due to the cognitive part of MS. I find it very difficult to remember things even things that are repeated every day. I also find that my "filter" is not working very well and I say some things that I ought not to.
As far as physically my right hand now sits on my lap most of the time. I'm no longer able to drive my chair except for very short drives in the morning. As the day goes on my arm is weaker and the range of motion decreases. I'm still able to use my right arm to tilt my chair seat back and up but it takes an unbelievable amount of concentration to get to move a few inches to run the tilt joystick. I can still pull my water or coffee cup toward me a little bit so that I can get to the straw. I'm still able to be here alone between my wife getting me up, my son coming to be me lunch and my wife getting home. When the chair is tilted back a little bit I am able to run my PC using smile mouse program and I can dictate with my voice software.
Right now I'm very comfortable in my chair and I can tilt back and sleep if I want to. I usually take a nap in the afternoon on weekdays. On the weekends I usually sleep pretty late and don't get out of bed until near lunchtime.
Late last year I could no longer use my right hand to scratch Macy's ears or chin. She pretty much ignored me now but does come up some nights and sleep on my shoulder for a while but mostly she doesn't have time for me. Oh well that's how cats are.
I'm really starting to wonder how much more this disease can take from me but I'm sure it will find something. I'm pretty close to not being able to turn the pages on my iPad while I'm in bed. Is suppose that is the next thing. I purchased a mouth stick that was bendable hoping to use it in bed and my iPad. When I received it it would not work as they described. I was able to email the seller on Amazon and they are working with the manufacturer to fix this problem. If they don't fix it soon I will have to figure out something else. I don't think a straight mouth stylus will work in my case. I may have to try.
Well that's all for now and God bless you.

1 comment:

  1. Phil. I don't often comment but I often read your blog. Thanks for keeping us updated on your faith journey with MS. I value your insights.

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