Recently I became eligible for Medicare. That happens after you're on disability for 25 months. We met with the man at St. Luke's who was very familiar with Medicare and other insurances. Medicare part A is free and covers hospitalization. After discussing our options with them we decided it was best for me to stay on my wife's insurance through work and turned down Medicare part B which cost money. To get the same coverage as my wife's insurance we would've had to purchase a supplement to part B and the cost would be more than what her insurance costs. We thought that Medicare would help cover home health so that our son who comes in beat me lunch and/or my wife gets me up could be relieved and Medicare would cover.
She started calling providers and found out that Medicare does not cover these services. Neither would part B. The first place she called asked her a lot of questions. The person she talked to was fairly rude and snotty. She insinuated that I was in it unsafe environment and that we should consider a higher level of care. Right, if we did that we would be completely broke in less than five years. My wife told me about it I got pretty angry about what this lady said. I told one of my sons about it knee got pretty angry too. I feel perfectly safe in my home. Reason stay I had in the hospital early last year taught me that being under the care of the medical field is not necessarily superior. A constant battle with the nurses over my care. I know what I need but many of them thought that since they were nurses they knew better than I did. One example was the thermostat. I am heat sensitive and I kept having to ask each nurse who came in of which there were dozens, to turn the down because it was too warm. They kept turning up the thermostat and that I would be overwhelmed by the heat. I finally caught one turning it up for no other reason than "that's where we have it set usually". I kind of yelled at her and told her to put a note on the thermostat to not change it. I didn't like to get obnoxious but after dozen people doing the same annoying thing I lost my patients.
So this "higher level of care" terrifies me. I happy with how things are and do not want to be immersed in the medical field unless absolutely necessary. The play be on the phone acted like a fire would be something that I'm exposed to here. This couldn't be further from the truth.
I think if I was in a nursing home and would be the lowest priority to be taken out of the building if there was a fire. It always took three nurses to use their lift to get me out of the bed at the hospital. My wife does it by herself every day with a ceiling lift. If there happens to be a fire we have smoke alarms and if I smell smoke so that I know it's not a false alarm I can use my phone with the "hey Siri" function. If I need anything I can call my son, wife or or if need be 911. There are two fire stations within 2 miles of our house. I feel much safer here that I would in a nursing home where would be the last priority because it would take three people to get me to safety. Every time I think about this I get angry. Was good to get this off my chest and I'm so glad I can be at my own home. I really hated the hospital because there were so many people who attended be that I had to educate on what was normal for me and my MS. I cannot get out of bed but they put down on my chart that I was a "fall risk". No amount of convincing would work so that they did not think I would fall. I cannot move so I don't know how it would fall and less they dropped me. Enough said you all take care
Glad you get to stay at home, Phil. Don't listen to those knot heads that called you a fall risk, and said you can't stay at home because there could be a fire. What the hell do they know? You stick with your peeps, they're looking out for you!
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