Ocrevus Update

We got some news about the new drug Ocrevus on Monday afternoon. Like everything so far with MS it's good news and bad news. I will start with the bad news; it is shorter. This drug for my MS was rejected by our insurance because it is not listed in their system yet. This is pretty annoying because when I was working there was a drug that help me stay awake and when we switched insurance companies the new company denied the drug for me. They said it was not approved by the FDA for my particular disease. They would not cover off label uses for drugs. Now I find it really annoying that an FDA drug approved for me in particular is denied. It's not even the same insurance company when I think they all just use any excuse to deny claims. I guess they need to pay for their gorgeous glass skyscraper office buildings more than they need to be honest. I have come to hate insurance companies with a passion.
The good news is that Genentech the manufacturer is going to provide the drug to me at no cost initially. Not sure what this means for the future but at least I can get started on. The neurologist office is now making an appointment for us to go to the doctors that would administer the drug. We'll find out soon when that appointment is. I have no idea when it will happen but it seems like things are going well and the neurologist nurse was very upbeat. She told my wife that I am the 5th person with MS that is approved from their office. I know Genentech wants to see how it works with somebody who is non-ambulatory because most of the people who will get this can still get around some.
I have tried lots of different things like nutritional supplements and such over the years and nothing as slow this disease down. It has advanced faster and further than anyone I have met in my support group with the same type. So my attitude is probably not the best because I've been disappointed so many times in the past. I was told to keep an optimistic attitude and that will benefit you but that has not happened. The optimistic attitude I had since my 2009 diagnosis was ground up and tossed aside by the speed with which my disease progressed. So I'm approved now and hopefully within a month I will get the new drug. I don't expect it to improve my condition, just slow the advance, especially with my breathing problems. Oh well here I go again trying to be hopeful!