Phil and Macy

Phil and Macy

Friday, August 11, 2017

Ocrevus – 1st infusion

I had my first infusion yesterday. We went to a local hospital since I am in a wheelchair the doctor thought it best to go to the infusion center at St. Luke's Hospital. The staff was fantastic. Probably helped that there were only 2 or 3 people there. We got there by 9 and that's when they start getting things ready. I guess they don't want to start until they know you're coming for sure. By 10 o'clock I was on the liquid IV and they gave me steroids, Benadryl and 2 Tylenol tablets. These were to help avoid reactions to the drug. Everything went very smoothly and they have a slow drip at the beginning and it speeds up every half hour until it's done. Then they wait an hour after the drug is done and have a liquid IV drip to make sure you're hydrated on the way for any side effects.
I had 3 different nurses but one main one. She came in every half an hour checked my blood pressure. It was a little high when we started and went down each time she checked it. I told her it was high because of my wife's driving. We all laughed.
It was a long day for me since I had to stay in my chair for the infusion. I had no reactions to the drug while I was there. That night I had a slight reaction, was a strange headache behind my eyes and just the back of my head. I used to get migraines and this was nowhere near as painful. It was a small headache in magnitude so I just ignored it until bedtime. I went to bed a little earlier than usual because I got up so early to be at the hospital at 9. That evening my left arm, the one the infusion went into, ached a little. It wasn't very bad and the Tylenol took care of it.
When I go to bed I watch television on my iPhone and my PC until my wife comes to bed. And then I read a Kindle book and I can turn pages with my Smyle Mouse and this little LED that I have. I still had the headache and so I found reading little bit of a strain and just closed my eyes and eventually I fell asleep. This morning I woke up and no more headache and no more arm pain.
On the way to the hospital I got a donut for breakfast I held off on the coffee until I asked the nurses about it. She said no problem so I pretty much ate and drank as normal as possible. The hospital gave me lunch and I had a chicken sandwich with fries and a brownie for dessert. I was glad I had no nausea at the hospital or at home. Overall I would say it was a good experience and the problems were tiny at most.

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