Phil and Macy

Phil and Macy

Thursday, August 10, 2017

Ocrevus update

I had my 1st infusion of the new MS drug this morning. I had to get up at 7:30 AM, can you believe it. Pretty rough duty. They started out with Benadryl, steroids and Tylenol to prevent drug reaction. They started out the infusion of the drug and then speeded up each half hour still is done. We started the Benadryl and stuff a little after 10. When we get there takes a while for them to order the drug and get a brought upstairs. That's why we didn't start till around 10. Then around 11 they started the MS drug. No reactions at the hospital and I'm hoping no reactions at home. I did fall asleep a few times and I missed 12 of Janette sisters came up to visit. I woke up before they left so I got to see them. I weathered doing it without Atlas for all those hours. How tough am I?
Next infusion is in about 2 weeks on a Friday. The next one after that will be in about 6 months. This simplified version of our works is the one I can sort of understand. This drug attaches itself to one component of the autoimmune system called B cells. I'm not sure if it kills them or drag them out of my body kicking and screaming but either way takes 6 to 9 months for them to regenerate to previous levels. That is why the six-month gap between transfusions.
They split the 1st one up into parts to make sure reaction to the drug are not too extreme. So everything went pretty well I listen to music and slept. Thank you all for your thoughts and prayers and summation point

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