I keep saying on Facebook and MS site that mentions that the MS person expected mobility problems but never expected cognitive problems. I knew this was a possibility and in the support group there have been a couple of people that are seriously affected by cognitive problems. What's bad about it is that it hit them when they were in their working years and they could not get disability approval without a lawyer. One of them never did get approval.
Now I am finding that is starting to affect me cognitively (thinking). Sometimes my filter in my brain doesn't work I say things that are rude or inappropriate. Sometimes when my wife scolds me I can't help but laugh because of the cognitive problems. My caregivers cut me a lot of slack on this and I'm laughing and not crying. I want to cry a lot but my anti-anxiety medication makes that impossible. Usually I run out of mojo around 7 or 8 PM but want to stay up until after 9 so that I split my time more evenly between bed and my chair..
What seem to be getting really bad is my memory and brain fogginess. Today when my wife came to get me up at 930 I thought it was Saturday and I said "I'm not ready to get up yet" because I sleep till 1030 or 11 on weekends. She said I have to get you up at, I left work to do it. I asked isn't it Saturday and she said no it's Friday.. I said sorry I'm thinking it's Saturday and she got me up. Now I'm having trouble keeping my eyes open and will probably fall asleep later. I think what I have today is called brain fog and usually a cup of coffee wakes me up but some days not so much. I'm having a lot of trouble remembering names and have trouble keeping track of what day it is.So far this is not lead to any serious issues other than annoyance.
I'm reading a book about the Vietnam War which was a very strange war especially for those who went over there and I can't say anyone ever really knew what we're doing over there. They had a saying that ended most conversations about the strangeness of their assignments and goals. The United States was never allowed to go in and and the war but were stuck over there as the "police action" that led to so much uncertainty. They're saying that ended most of these conversations was "well there it is" so that's what I have to say about my MS and all the different symptoms is "well there it is". I know people who have my type and are still able to walk but they have other symptoms that go with their MS and I wouldn't trade with them. The brain stuff has been very slow to show itself so hopefully I can keep a handle on the few things I need to remember.
Well this will probably my last post before Christmas so have a happy holiday season and God bless you.
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