MS and prayers

Suppose I need to mention something about my MS since that is one of the purposes of my blog. I have found that any benefit I got from my 1st infusion of Ocrevus was more related to the steroids I got along with them that were meant to ease reactions to the drug. We discussed steroids with the doctor and they are not a long-term solution. The benefit from them dropped off very quickly and prolonged use leads to many other problems without a real benefit. I get my next infusion early next year. At this point I have very little hope of any restoration but I notice a slowing of my symptoms. So maybe next infusion will help stop the disease progression.

I suppose I should mention prayer. Of course many people are praying for me to get better. There was also a little girl named Evie who received much prayer due to her kidney cancer. Miraculously with the timing she received the transplant organs she needed. Unfortunately the cancer spread to her brain and she had some tumors removed. Not long after that more new tumors showed up in her brain and there was nothing the medical field could do. Little Evie, 4 years old, passed away in October. Part of me feels like "why pray for something". So little of what I pray for actually happens and part of me thinks prayer doesn't count. Course I couldn't be further from the truth because prayer brings us into contact with God. I remember reading once that prayer doesn't change God so much as it changes our attitudes and we learn to accept the effects of living in a sinful world. We lived in a world that cast out the true King and ruler of the world, Jesus. His blood was shed on the hill of Golgotha. We live in a world stained by sin and the end result is death. We are fortunate that God has made a way to become accepted by him that is by the sacrifice of the Lamb of God Jesus. All this being said we need to pray and just because prayers are not answered the way we want does not mean that God doesn't hear

So back to my MS. I find that I sleep a lot more and to be honest I'm glad because it helps me get through the day to sleep more of it. Of course my dream is that I go to sleep sometime and do not wake up here. So far that is not happened. I'm finding I take an afternoon nap almost every day during the workweek. I can sleep up to an hour to an hour and a half and still be able to fall asleep around midnight every night. I go to bed around 930 and watch Amazon prime or things I've recorded on TiVo from my phone. Then when my wife comes to bed she puts on my breathing machine and I switch to reading on my PC. Some nights smile mouse works really good even though I have my nose mask on and some nights I have to do twisting and turning with my head to get it to turn pages. I'm not sure why one night it works flawlessly and the next it's kind of a pain. So far I sleep really good at night except for maybe 2 or 3 nights a month. Not sure why this is but even before MS I had nights that I couldn't sleep so that is not really increased. The difference is that before MS if I couldn't sleep I could get up go to living room. thank you for reading my blog, it really gives me something to do during the day. Thank you for all your prayers and thoughts.