Since I have been diagnosed as having primary progressive MS I have sought to modify my house and car/van to accommodate this illness. Originally the doctor in 2009, we had a good prognosis. He thought it would be so walking with a cane I the time I reached retirement age. This turned out to be untrue and that my MS progressed faster than I would've anticipated from what I've read about case studies, learned that the support group and based on the doctors original prognosis. Since that time I've gone through quite a number of adjustments. Not only my method of getting around but our house and vans to accommodate this disease. I would say until a year ago I had a positive outlook and felt that I would get some benefit from that. It turned out not to be so. About a year ago my wonderful cat Macy died. To be honest I was a huge blow to me and I can never replace her. Since that time my attitude has changed. I now feel I am more realistic in my Outlook which some medical people take to mean that I am depressed. I don't believe that is so well come to realize that most likely possibility of being free from this disease is to pass out of this scene
I know I will be with Jesus and that makes me accept my physical difficulties. Since my diagnosis I would say I used to go through some sort of adjustment or paradigm shift every year to year and a half. Since I'm no longer been able to work four and one half years ago these shifts seemed to be every six months so. Fortunately not my sons ministry to my computer remotely. I use a voice recognition software as well as a program called smile mouse which follows my face. Recently I have been faced with a new paradigm shift. The wound clinic Dr., why think the world of, said she believes by skin is failing is no longer able to heal itself even with their intervention. Now I'm now on a new footing, medically speaking. After opposing it for many years now I have finally accepted getting a hospital bed which means I will be sleeping by myself from here on. Am able to interface with the world through Facebook and my PC. My fingers are course are paralyzed so late I able to use my iPad or iPhone. And able to use iPhone a little bit to the use of Siri. I am amazed how limited Siri is. I can make a phone call but cannot hangout and they cannot answer a call it seems to me rather shortsighted.
So my latest paradigm shift is to get used to a hospital bed in my wife they began a different room. I must admit that this bed is very comfortable and so far I sleep very well. I'm not sure my wife does because a few times I have needed something in the night she answered right away. I don't think she is sleeping very deeply and we hope she gets used to this. Her care for me is amazing. I am as needy as newborn baby. This is my latest adjustment as well as her adjustment. I had hoped the cat would come and sleep on my legs like she used to but so far it has not happened. When my wife comes in Jordyn jumps up on my legs and I know the first time she did that if the cat was there would be the last time the cat was there. I also spend much more my day in bed than previously. I'm glad I have my PC because I can read Kindle books using the smile mouse turned the pages or I can watch Amazon prime videos. These have spoiled me because it is no commercials. If I watch commercial I started daydreaming during the commercials and usually miss some of the show. This is the newest change I have to deal with. I grew up with with the Doris Day show and the opening song had "what will be, will be". This is probably not the best outlook for Chris and I have with all this stuff is bigger than me now. Combined prayer of dozens of people is not changed my disease progression and so I accept that. God does better than I how the course of my life should go. Praise be to God has saved you sinner like me!
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