Here is a photo of Atlas being a service dog. For a month now or longer I have not been able to stretch my own shoulder by moving my arm to the right. I have no longer been able to use my right hand to do much of anything. I haven't been able to drive my chair for weeks now. With Tom being home I thought perhaps him stretching my shoulder might bring some functionality back. It is helped loosen my shoulder but unfortunately the functionality is gone probably never to return. I have a caretaker control on my chair now it took about three months from when I okayed it to when he got installed.
So here is a happy photo of Atlas laying on my arm after Tom stretches the shoulder out. So he is my service dog and really loves to be covered up. He is such a sweetheart.
I have not been doing well but don't want to discuss that on Christmas. Christmas is a happy time! So I have a Merry Christmas and I hope I can post later about this stupid disease.
Hi, I'm Phil and the furry one is Macy the MS (multiple sclerosis) cat. I have added the story of Macy to a page at the very bottom of this blog. Due to the timing of my MS and getting Macy we formed a bond that was a once-in-a-lifetime thing. Sadly Macy succumbed to either kidney or heart failure in September 2017. A few months later we adopted a bonded pair of cats. They will never replace Macy but they are very entertaining. Their names are Lacy and Slim
Phil and Macy
Sunday, December 25, 2016
Wednesday, November 30, 2016
Lengthy update – Macy makes my life difficult yesterday
I haven't posted for a while because I'm getting worse with my MS. Course I'm expecting it to get worse but it always surprises me how quickly it happens. This week is not gone very well physically. A few weeks ago we could no longer stretch my right arm out perpendicular to my body to stretch my shoulder and arm in the mornings. This coincided with a decrease and the functionality of my right hand. When my son Tom was home I had him stretch my arm out before he got me up thinking it would help. It didn't help my right hand functionality so I realize it's not thing MS is taking away.
Monday morning I woke up I couldn't get my right hand out of the covers. After my wife put me in my chair I was barely able to drive out to the living room. I couldn't feed myself the rest of my breakfast. She fed me half of it before she had to go back to work so I didn't go hungry. My right hand became like my left-handed loses crawled up in a ball on my lap for most of the day. I couldn't get my voice software to work without a reboot I had to wait for my son to come and give me lunch and rebooted then. That pretty much wasted Monday.
Yesterday my voice software was working and I started to go through Facebook. Then Macy decided to jump up on my lap. This was much earlier than usual and I just started Facebook so I didn't back up to give her some more room. I guess is was a mistake because she stepped off my lap onto my laptop PC and walked around on the keyboard. She turned around a few times and then lay down on the keyboard. She couldn't get comfortable and so she got up and walked her around in a circle again and ended up sitting facing the window where she could see out a little bit. She ignored my pleas to get off my keyboard. That's how cats are, they're in charge. She finally got off my PC and I couldn't use it anymore because she whacked out the voice software and everything else. I had to wait for my son to reboot it and then I tried again. Since my right hand is failing it ended up falling on the control joystick and I ended up turning sideways my PC table and running into it at the same time. My arm was stuck so I used "hey Siri" to call my son and he came and got me unstuck. I decided I had had enough and so I leaned my chair back and decided to take a nap until my wife got home.
When I woke up it was near 5 PM. Unfortunately I have arm spasm when I wake up. During my right arm spasm my hand at the joystick again and started to move my PC table. I tried as hard as I could to move it off of the joystick. I was partially successful but ended up being on the opposite side of the joystick so that it ran into my PC table, lamp table and I started spinning around. Could not get my arm off of it and I ended up driving my chair and PC table into the dining table which made me come to a stop. I was able to finally get my hand off and then use my hand a little bit to drive backwards away from the dining table and out from under the PC table little bit. I was not in any danger or pain so I decided my wife would be home within an hour or so so I would just stay there to see came home. Facebook was open so I ended up being able to catch up on my newsfeed before she got home. Plus her art when she came home she didn't scold me but just helped me get back to my normal spot. She fixed my PC table and I stayed out of trouble rest of the night.
This morning I have a small amount of mobility in my right hand and decided to use what little energy I have to post on my blog. I think the previous days problems were just a forerunner of what I can expect in the future from my right hand but today I can do a little something so I well. For some reason yesterday's fiascoes did not bother me. I wish I could say was because I am a good Christian and have the Lord in my art. It's more like I just feel that inside and what more can happen to me that hasn't already happened. I'm probably not the best example of a Christian but I do know Jesus and know that he loves me. I appreciate that I have some used today and hope my right hand will continue to be usable even a tiny bit. No telling though MS is a cruel taskmaster.
Monday morning I woke up I couldn't get my right hand out of the covers. After my wife put me in my chair I was barely able to drive out to the living room. I couldn't feed myself the rest of my breakfast. She fed me half of it before she had to go back to work so I didn't go hungry. My right hand became like my left-handed loses crawled up in a ball on my lap for most of the day. I couldn't get my voice software to work without a reboot I had to wait for my son to come and give me lunch and rebooted then. That pretty much wasted Monday.
Yesterday my voice software was working and I started to go through Facebook. Then Macy decided to jump up on my lap. This was much earlier than usual and I just started Facebook so I didn't back up to give her some more room. I guess is was a mistake because she stepped off my lap onto my laptop PC and walked around on the keyboard. She turned around a few times and then lay down on the keyboard. She couldn't get comfortable and so she got up and walked her around in a circle again and ended up sitting facing the window where she could see out a little bit. She ignored my pleas to get off my keyboard. That's how cats are, they're in charge. She finally got off my PC and I couldn't use it anymore because she whacked out the voice software and everything else. I had to wait for my son to reboot it and then I tried again. Since my right hand is failing it ended up falling on the control joystick and I ended up turning sideways my PC table and running into it at the same time. My arm was stuck so I used "hey Siri" to call my son and he came and got me unstuck. I decided I had had enough and so I leaned my chair back and decided to take a nap until my wife got home.
When I woke up it was near 5 PM. Unfortunately I have arm spasm when I wake up. During my right arm spasm my hand at the joystick again and started to move my PC table. I tried as hard as I could to move it off of the joystick. I was partially successful but ended up being on the opposite side of the joystick so that it ran into my PC table, lamp table and I started spinning around. Could not get my arm off of it and I ended up driving my chair and PC table into the dining table which made me come to a stop. I was able to finally get my hand off and then use my hand a little bit to drive backwards away from the dining table and out from under the PC table little bit. I was not in any danger or pain so I decided my wife would be home within an hour or so so I would just stay there to see came home. Facebook was open so I ended up being able to catch up on my newsfeed before she got home. Plus her art when she came home she didn't scold me but just helped me get back to my normal spot. She fixed my PC table and I stayed out of trouble rest of the night.
This morning I have a small amount of mobility in my right hand and decided to use what little energy I have to post on my blog. I think the previous days problems were just a forerunner of what I can expect in the future from my right hand but today I can do a little something so I well. For some reason yesterday's fiascoes did not bother me. I wish I could say was because I am a good Christian and have the Lord in my art. It's more like I just feel that inside and what more can happen to me that hasn't already happened. I'm probably not the best example of a Christian but I do know Jesus and know that he loves me. I appreciate that I have some used today and hope my right hand will continue to be usable even a tiny bit. No telling though MS is a cruel taskmaster.
Wednesday, November 23, 2016
Inspiring new TV show – This Is Us
I have been feeling pretty depressed lately. I had the procedure in February hoping to get a permanent fix to my trigeminal pain in my jaw. Couple months ago the pain came back and the neurologist at U of I hospital said I may be able to control the pain the smaller doses of the pain that affected my MS. So I tried that and it really helped with the pain and it is a much smaller dose than before. I'm not sure how much it affects my MS and my limited mobility of my right hand. I've lost mobility but I'm not sure if it is the combination of MS and the pain med or just MS. I talked to the doctor Monday about it these going to call my neurologist to save me having to explain it another 2 to 3 times. He also is treating me as if I have pneumonia again which I possibly do. I have bore my voice back so I'm back to using my PC a little bit.
So I haven't been feeling very thankful lately even though I have a wonderful family to be thankful for as well as friends. There is a new TV show called "this is us". I have become quite addicted to the show and my favorite character is Randall who was adopted and recently found his birth father. Finding his birth father was complicated by the fact his father has terminal cancer. In the show last night he was asked "what does it feel like to be dying"when he was in an awkward situation outside getting surprise share. His answer almost brought me to tears.
I'm sure I won't do the subject justice but I will try my best. He said it's like all these beautiful moments are swirling around him and he is trying to grab them and hold them tight so they are lost. Now he's getting older and slower and it's harder to get them. He said like when my granddaughter is sitting on my lap and falls asleep and I feel her breath on my shoulder. Or when his son laughs, come from deep down in his chest. He said he is getting slow and old and it's hard to grab these moments as a swirl around him and he advised the person he was talking to to grab these moments of they are still young and can hold on them.
I started thinking about all of the beautiful things that have swirled around me and I'm filled with joy and appreciation. My wife and I if hardly been apart since we been married. There been a few work trips and a few trips where we didn't go together but for the most part we have slept together for all these years. I realize how much I appreciate hearing your breathing while she sleeps. When I wake up in the night and I hear breathing next to me it is one of those beautiful moments. A few years ago we thought about getting me a hospital bed and me sleeping in the room by myself. I told her that is the last thing I want to do is to lose having her next to me. Hearing your breathing is one of those great choice I have do remember, cradle and enjoy over and over again.
I have so many other memories from my sons when they were babies up until the beautiful adults have become. So many beautiful things for me to latch onto and not forget. When I think of these things I feel truly blessed and have trouble feeling depressed anymore.
I hope you all have a great Thanksgiving, I'm sure I will.
So I haven't been feeling very thankful lately even though I have a wonderful family to be thankful for as well as friends. There is a new TV show called "this is us". I have become quite addicted to the show and my favorite character is Randall who was adopted and recently found his birth father. Finding his birth father was complicated by the fact his father has terminal cancer. In the show last night he was asked "what does it feel like to be dying"when he was in an awkward situation outside getting surprise share. His answer almost brought me to tears.
I'm sure I won't do the subject justice but I will try my best. He said it's like all these beautiful moments are swirling around him and he is trying to grab them and hold them tight so they are lost. Now he's getting older and slower and it's harder to get them. He said like when my granddaughter is sitting on my lap and falls asleep and I feel her breath on my shoulder. Or when his son laughs, come from deep down in his chest. He said he is getting slow and old and it's hard to grab these moments as a swirl around him and he advised the person he was talking to to grab these moments of they are still young and can hold on them.
I started thinking about all of the beautiful things that have swirled around me and I'm filled with joy and appreciation. My wife and I if hardly been apart since we been married. There been a few work trips and a few trips where we didn't go together but for the most part we have slept together for all these years. I realize how much I appreciate hearing your breathing while she sleeps. When I wake up in the night and I hear breathing next to me it is one of those beautiful moments. A few years ago we thought about getting me a hospital bed and me sleeping in the room by myself. I told her that is the last thing I want to do is to lose having her next to me. Hearing your breathing is one of those great choice I have do remember, cradle and enjoy over and over again.
I have so many other memories from my sons when they were babies up until the beautiful adults have become. So many beautiful things for me to latch onto and not forget. When I think of these things I feel truly blessed and have trouble feeling depressed anymore.
I hope you all have a great Thanksgiving, I'm sure I will.
Saturday, November 19, 2016
MS post – possibly my last.
Well I am totally baffled by this crazy disease I have. Not sure if it's my cough or MS but I am having a very difficult time talking. I know my MS affects my diaphragm it has made speaking difficult. Today is the third day of a quickly decreasing ability to speak. Am finding I can only say two or three words a time and the volume is very low. I'm not sure if this it's permanent or temporary. If it's permanent I may only have this post and one more and I have saved but not publish. If this is my last one I feel I have not publish all that I wanted. This disease is so strange to me. I used to joke when I had a bad cold or the stomach flu that I felt like dying but this wasn't fatal. To me this disease is so weird because it debilitate's but is not terminal. The doctors of told me can expect to live to a normal life expectancy. To me disease is severe should also be terminal!
This brings up a very serious issue. In first John we are told that get no that we have eternal life. I know where I will go when the time comes for me to pass. There is also the fact that Jesus could come back at any time. Personally I don't think I will be in my lifetime because there is a first the apostle Peter wrote that says "he is long-suffering toward us, not willing that any should perish". So, dear reader God is lingering over his creation waiting for that day for all his own to be saved. There is a him that says "gently and tenderly Jesus is calling, calling for you and for me... Oh sinner,, come home"! I have heard saviors call but I fear my loved ones who do not know Jesus. Please come home for its too late.
This brings up a very serious issue. In first John we are told that get no that we have eternal life. I know where I will go when the time comes for me to pass. There is also the fact that Jesus could come back at any time. Personally I don't think I will be in my lifetime because there is a first the apostle Peter wrote that says "he is long-suffering toward us, not willing that any should perish". So, dear reader God is lingering over his creation waiting for that day for all his own to be saved. There is a him that says "gently and tenderly Jesus is calling, calling for you and for me... Oh sinner,, come home"! I have heard saviors call but I fear my loved ones who do not know Jesus. Please come home for its too late.
Friday, November 18, 2016
I'm Batman!
This photo was taken near Halloween. We didn't get it back to after Halloween but it is too cute not to post. He didn't really like a mask but he is such a well-behaved dog he put up with it long enough to get a photo or two. I can just imagine him saying "I'm Batman". He will be here for Thanksgiving so we're really looking forward to that.
Two cat stories and a small update on me.
It's Friday morning I was hoping to have a cuddly cat again yesterday. Not gonna happen. Today she is crazy kitty. She has a scratching post and she attacks it even though she is declawed in the front. While she attacks the post she usually looks back at me as if to say "yeah this could be you I was attacking if I had claws!" Then she hides behind things on the TV stay in and then jumps out and attacks the footstool. Then she tears down the hallway and then back into the living room. It's kind of funny how one quiet little cat get some like a herd of horses running down the hall. I don't think she would do very good in the outdoors. Her hunting skills seem a little off and she would probably starve. Of course we letter to think the that she is a vicious predator and act scared when she was seems crazy. Right now she told back down the hall and designing under one of the best and will probably stay there the rest of the day.
As for me I still have this stupid cough. I realized a few weeks ago that I was coughing on phlegm over and over. My wife got be some Mucinex and that really helps especially when I'm in bed laying on my back. Not sure how much longer this is going to last it's been weeks now. Of course is more annoying than anything else. I'm sure I don't have bronchitis because I don't have any pain when I cough. I've had bronchitis dozens of times since I was a kid. Part of it is my MS that affects my diaphragm and my breathing so I may be on the Mucinex for quite a while.
Yesterday our neighbor Colleen came over with her cocker spaniel named Roxie. I had her left Roxie up on the couch where the cat was sleeping. Macy did not seem the slightest bit annoyed by her and let Roxie Sniff her and even lick her head. Small dogs don't seem to worry her. Atlas was small when she first met him so now I'm thinking her animosity toward him is jealousy. Poor kitty has to share.
As for me I still have this stupid cough. I realized a few weeks ago that I was coughing on phlegm over and over. My wife got be some Mucinex and that really helps especially when I'm in bed laying on my back. Not sure how much longer this is going to last it's been weeks now. Of course is more annoying than anything else. I'm sure I don't have bronchitis because I don't have any pain when I cough. I've had bronchitis dozens of times since I was a kid. Part of it is my MS that affects my diaphragm and my breathing so I may be on the Mucinex for quite a while.
Yesterday our neighbor Colleen came over with her cocker spaniel named Roxie. I had her left Roxie up on the couch where the cat was sleeping. Macy did not seem the slightest bit annoyed by her and let Roxie Sniff her and even lick her head. Small dogs don't seem to worry her. Atlas was small when she first met him so now I'm thinking her animosity toward him is jealousy. Poor kitty has to share.
Wednesday, November 16, 2016
Biggest Fear – North Korea
It seems really strange that in this last election the most volatile and dangerous area of the world was never mentioned except in passing. I'm talking about North Korea. North Korea as the most concentrated dangerous military up anywhere in the world. Of course the US is the dominant military power but we are spread out all over. North Korea is concentrated. A few months ago I read a few statistics that support North Korea as my biggest fear.
Besides having nuclear weapons that can reach all of the Pacific Rim there working on missiles that could reach the West Coast of the United States. Right now they have nuclear missiles that can reach Western Alaska. Besides their nuclear armament they have conventional Army and weapons. Right now there is 2 1/2 million in their standing army with a reserve of 2 million more. This is opposing a South Korean force of 1 million standing army and a small contingent of US troops in a base.
I read that North Korea, if it were to invade South Korea, would take him three days to occupy Seoul South Korea. There is only one thing that keeps them from doing this. It is the nuclear deterrent that the United States has in place due to our base there and an agreement was South Korea to defend them in the event of an invasion.
So the scenario I think of that terrifies me is that the only deterrent would be that we would "bomb the crap out of them" if they were to invade South Korea. This isn't a fantastic to deterrent because if there are me is in South Korea we can only bomb North Korea. I know Donald Trump probably views the leader of North Korea as that strange little kid with funny hair that wears weird coats. Leader of North Korea probably views Donald Trump is that strange guy with the weird comb-over who wears red ties.
One suggestion Donald Trump bad was to give nuclear arms to Japan but I don't see how that would work. Japan is the oldest civilization in the Pacific Rim. They are not inclined to back South Korea and especially would never backed China which seems to hold the North Korea and check a little bit. I think most Americans think the Pacific Rim is all one big happy family. This is so far from the truth. North Korea, South Korea, Japan and China are all very separate and have no real bonds to each other. My big fear is that this tight rope that the US has been walking with the Koreas is beyond the scope Donald Trump since he just wants to "bomb the crap out of people" of course if we use nuclear weapons against North Korea began expected nuclear retaliation by China against us.
The concentration of military in the Korean Peninsula is almost incomprehensible. Our deterrent said small force that would be wiped out very quickly and be our reason to act with nuclear capability. I think that is enough said.
Besides having nuclear weapons that can reach all of the Pacific Rim there working on missiles that could reach the West Coast of the United States. Right now they have nuclear missiles that can reach Western Alaska. Besides their nuclear armament they have conventional Army and weapons. Right now there is 2 1/2 million in their standing army with a reserve of 2 million more. This is opposing a South Korean force of 1 million standing army and a small contingent of US troops in a base.
I read that North Korea, if it were to invade South Korea, would take him three days to occupy Seoul South Korea. There is only one thing that keeps them from doing this. It is the nuclear deterrent that the United States has in place due to our base there and an agreement was South Korea to defend them in the event of an invasion.
So the scenario I think of that terrifies me is that the only deterrent would be that we would "bomb the crap out of them" if they were to invade South Korea. This isn't a fantastic to deterrent because if there are me is in South Korea we can only bomb North Korea. I know Donald Trump probably views the leader of North Korea as that strange little kid with funny hair that wears weird coats. Leader of North Korea probably views Donald Trump is that strange guy with the weird comb-over who wears red ties.
One suggestion Donald Trump bad was to give nuclear arms to Japan but I don't see how that would work. Japan is the oldest civilization in the Pacific Rim. They are not inclined to back South Korea and especially would never backed China which seems to hold the North Korea and check a little bit. I think most Americans think the Pacific Rim is all one big happy family. This is so far from the truth. North Korea, South Korea, Japan and China are all very separate and have no real bonds to each other. My big fear is that this tight rope that the US has been walking with the Koreas is beyond the scope Donald Trump since he just wants to "bomb the crap out of people" of course if we use nuclear weapons against North Korea began expected nuclear retaliation by China against us.
The concentration of military in the Korean Peninsula is almost incomprehensible. Our deterrent said small force that would be wiped out very quickly and be our reason to act with nuclear capability. I think that is enough said.
Monday, November 14, 2016
MS Post – trying to balance the scales
I want to thank anyone who is posted and uplifting comment on Facebook. I thought I should try to maybe be a little more honest. With the MS I have I'm constantly grieving the loss of some ability. It seems be a never-ending cycle of grief, and then accept and adapt. I don't think there's a way to adapt to losing the use of my right hand and so my grief as been overwhelming.
In the mornings I started out in a good mood and can use my right hand a little bit. By evening both of my hands become almost useless and my wife asked to do everything for me. This has been pretty hard for me to deal with and in the evenings I am filled with despair. I tried to project a positive outlook on my website but I want you all to know that most evenings I struggle with depression and despair. This makes it difficult on my caregivers. I'm so sick of being a burden to those around me. I know they find it frustrating and I find it more than frustrating and long for the day when I will be read of this "body of corruption". But I just wanted to give a balanced view of my disease and condition.
This last weekend I was especially a burden to my caregivers emotionally. Here it is Monday morning and like most mornings renewed somehow in spirit.
I am grieving also for my friend Regis who has been experiencing MS hugs. This is where it's like a band around your chest and stomach area and it makes breathing hard and fills people with terror and anxiety. I have not experienced this phenomenon except maybe once. I feel for Regis and hope he gets some relief somehow. Of course there is no medical cure but I know God's overall.
In the mornings I started out in a good mood and can use my right hand a little bit. By evening both of my hands become almost useless and my wife asked to do everything for me. This has been pretty hard for me to deal with and in the evenings I am filled with despair. I tried to project a positive outlook on my website but I want you all to know that most evenings I struggle with depression and despair. This makes it difficult on my caregivers. I'm so sick of being a burden to those around me. I know they find it frustrating and I find it more than frustrating and long for the day when I will be read of this "body of corruption". But I just wanted to give a balanced view of my disease and condition.
This last weekend I was especially a burden to my caregivers emotionally. Here it is Monday morning and like most mornings renewed somehow in spirit.
I am grieving also for my friend Regis who has been experiencing MS hugs. This is where it's like a band around your chest and stomach area and it makes breathing hard and fills people with terror and anxiety. I have not experienced this phenomenon except maybe once. I feel for Regis and hope he gets some relief somehow. Of course there is no medical cure but I know God's overall.
Saturday, November 5, 2016
Silly animal story and serious MS post
I'm able to post a little bit today. I'm here by myself with Tom's dog Atlas. The cat is here somewhere which she hides a lot of the day when the dog is here. Even though she intimidates him she still hides. Yesterday she was laying in the dog spot on the couch. The sun was beating in and she laid in the sun. He got up on the couch and was sort of close to her. He wouldn't turn his head over by her because he was afraid of her. After about five minutes of looking uncomfortable he got down on the floor and wouldn't go near. It was pretty funny
I should post something about MS once in a while. You probably know is gotten pretty bad and I am losing the use of my right arm and hand which was all I had left. In 2009 when I was diagnosed the doctor told me I would probably walk with a cane but be fine until retirement age which in my case is about 67. I've always wondered as he was blowing smoke because of he told me the truth would go out and hang myself. He's a little bit of a not so and I'm never sure about that.
I did ask him once if something else could be affecting me long with the MS that made it in advance so fast. He said possibly but anything that would do that was more rare than what I had and had no treatments either so I just dropped it.
Some of things that have helped me deal with my disease verses in the Bible. I'm not going to give the references new can look them up for yourself the one. There is one of the Old Testament that says "shall not the Judge of all the earth do right". In Romans Paul says "does the Clay say to the potter why has thou made me such?". God's overall and and God is good. If I have a disease I need to endure and keep in mind my heavenly home and the joy that awaits me seeing Jesus as he is.
There is also a quote from Shawshank redemption of "get busy living or get busy dying". This is come to my thoughts and many many times.
When I was much younger I read the book "flowers for Algernon". it was made into the movie Charlie. In it a man who was retarded got a medical treatments that made him supersmart and he fell in love with the doctor who treated him and she with him. Unfortunately the procedure started declining in the test mouse whose name is in the title. Charlie started to decline also and it was a very sad book. So sometimes I wonder about myself in this disease. I think but of my life were reversed and I started out quadriplegic at birth and as I got older I get better until in my 20s I was totally healthy. I would be ecstatic and rejoice. So what gave my disease I think of all the times I had where I was healthy and all of the good things I enjoyed. Especially my wife and children they have probably great joy and it is for them that I persevere on even though I deal with depression due to my disease. I can't say how this will and but I know that there are three outcomes. One is that I get out of this disease through death. I can also get out of this disease due to a miracle. I'm not expecting that. Jesus could return and call me home into the clouds (rapture). The true hope of the Christian is to "wait for his son from heaven". No one knows when that will be it could be today, it could be in 100 years but were supposed to have that hope right in front of us to keep us going. I pray that would be true of me as I deal with this awful disease.
I should post something about MS once in a while. You probably know is gotten pretty bad and I am losing the use of my right arm and hand which was all I had left. In 2009 when I was diagnosed the doctor told me I would probably walk with a cane but be fine until retirement age which in my case is about 67. I've always wondered as he was blowing smoke because of he told me the truth would go out and hang myself. He's a little bit of a not so and I'm never sure about that.
I did ask him once if something else could be affecting me long with the MS that made it in advance so fast. He said possibly but anything that would do that was more rare than what I had and had no treatments either so I just dropped it.
There is also a quote from Shawshank redemption of "get busy living or get busy dying". This is come to my thoughts and many many times.
When I was much younger I read the book "flowers for Algernon". it was made into the movie Charlie. In it a man who was retarded got a medical treatments that made him supersmart and he fell in love with the doctor who treated him and she with him. Unfortunately the procedure started declining in the test mouse whose name is in the title. Charlie started to decline also and it was a very sad book. So sometimes I wonder about myself in this disease. I think but of my life were reversed and I started out quadriplegic at birth and as I got older I get better until in my 20s I was totally healthy. I would be ecstatic and rejoice. So what gave my disease I think of all the times I had where I was healthy and all of the good things I enjoyed. Especially my wife and children they have probably great joy and it is for them that I persevere on even though I deal with depression due to my disease. I can't say how this will and but I know that there are three outcomes. One is that I get out of this disease through death. I can also get out of this disease due to a miracle. I'm not expecting that. Jesus could return and call me home into the clouds (rapture). The true hope of the Christian is to "wait for his son from heaven". No one knows when that will be it could be today, it could be in 100 years but were supposed to have that hope right in front of us to keep us going. I pray that would be true of me as I deal with this awful disease.
Sunday, October 30, 2016
Things have not been going good – not sure when I will resume my blog.
Friday I started having a fever and also the cough. I usually have a cough due to allergies and nasal problems so the cough is nothing new. Saturday I woke up and both my arms were dead as well as my hands. I couldn't do anything. Couldn't use my PC, iPad or iPhone. All I could do was watch TV asked people to change the channel for me if I wanted it on a different station. Today is Sunday and I still don't have the use of my right hand or arm like I did earlier in the week. I'm afraid it is now going to be a permanent change and if not it will soon be permanent. Just wanted to let you know that my blog may and unless I can get my hand back. I will try to stay active on Facebook because when no one's here the TV sound was off I can maneuver and Facebook but is too hard to do much else. Hopefully I can get my hand back enough to read books but right now I'm not able to do that. I would use the voice software except when I tell it to go to sleep so that I can read a page it somehow turned to self back on and search clicking the mouse when I don't want to. It ends up jumping ahead a bunch of pages and I have a hard time getting back to where was. It's hard to believe this MS is this bad. I used to have a good attitude and tried to maintain a positive outlook I think that's gone now. Maybe I'll get it back, maybe I won't. It just wanted to keep you guys updated.
Friday, October 28, 2016
Macy goes for a ride and other stories!
Before I tell you the story I need to give you a little background on my chair control. There is a controller with the joystick. Joystick is actually a steel rod that comes out of the controller. Then there is a plastic/rubber and that is put on this steel rod. (Get your mind out of the got her JG H) a while back I was having trouble with the standard one that was about a half inch in diameter. I switch to one there was quite a bit larger on the top similar to mushroom. I could use the palm of my hand on this one. Recently though my arms and hand are not working very well and when I put my arm at rest I would hit this controller button and move my chair without wanting to. This caused some problems and so I went back to the other type of controller cover, the half-inch diameter one. There was a short time where I didn't have anything on it and it was just a steel rod. This is the background.
Without a joystick cover Macy could get up on my lap and lay there without hitting it. And I got used to that. Then my son with the joystick cover back on and I forgot that there might be an issue with Macy. The next day she jumped up on my lap table, turned around three or four times, lay down in the same spot she always does except now her hip was against the joystick cover. Away we went and she drove my chair into my PC table and then the PC table into the couch and lamp table. This scared her and she jumped off. I was able to get my PC table back to normal spot. No real damage done but I didn't want to push the lab table with my chair and leave a mark in the wood so I left it. When my wife came home she said "what happened here" and I told her the story. She said "you're going to blame the cat on this?" I had to say yes to be truthful and I thought Macy would never get on my lap again. I was wrong.
The next day Macy jumped up on my lap again. I was really surprised and backed up a little so I wasn't close to the table. I turned off the controller on she was getting settled. I was not expecting her to spend an hour sleeping on my lap. I kept trying to turn the controller back on so I can get more comfortable but her hip was on the controller switch and the joystick. When she finally did get down my arm was pretty dead by then. I only get a little bit of use out of it in the mornings before it becomes useless for the most part. When she left I turned the controller on and then tried to tilt the seatback up a little. My hand got stock and he kept tilting forward to I was smashed against my PC table. My hand was trapped but I moved it off the tilt control. Unfortunately when I got my hand off of the took control it got stuck on the drive control. I started going around in a circle with the PC table attached to me. When the PC table hit the couch it ended up tipping over and falling down so that my iPhone, iPad and PC were stuck on the floor. Everything that was on the table when crashing down and made a big mess. I was pretty bummed about the whole thing and keep wondering how I am supposed to be with this disease if I can't use my controller. Needless to say yesterday was one of the worst days ever. Today though I woke up and remembered that "his mercies are new every morning" God is good even in the midst of difficulties and trials. Praises he is great name! Mouse down
Without a joystick cover Macy could get up on my lap and lay there without hitting it. And I got used to that. Then my son with the joystick cover back on and I forgot that there might be an issue with Macy. The next day she jumped up on my lap table, turned around three or four times, lay down in the same spot she always does except now her hip was against the joystick cover. Away we went and she drove my chair into my PC table and then the PC table into the couch and lamp table. This scared her and she jumped off. I was able to get my PC table back to normal spot. No real damage done but I didn't want to push the lab table with my chair and leave a mark in the wood so I left it. When my wife came home she said "what happened here" and I told her the story. She said "you're going to blame the cat on this?" I had to say yes to be truthful and I thought Macy would never get on my lap again. I was wrong.
The next day Macy jumped up on my lap again. I was really surprised and backed up a little so I wasn't close to the table. I turned off the controller on she was getting settled. I was not expecting her to spend an hour sleeping on my lap. I kept trying to turn the controller back on so I can get more comfortable but her hip was on the controller switch and the joystick. When she finally did get down my arm was pretty dead by then. I only get a little bit of use out of it in the mornings before it becomes useless for the most part. When she left I turned the controller on and then tried to tilt the seatback up a little. My hand got stock and he kept tilting forward to I was smashed against my PC table. My hand was trapped but I moved it off the tilt control. Unfortunately when I got my hand off of the took control it got stuck on the drive control. I started going around in a circle with the PC table attached to me. When the PC table hit the couch it ended up tipping over and falling down so that my iPhone, iPad and PC were stuck on the floor. Everything that was on the table when crashing down and made a big mess. I was pretty bummed about the whole thing and keep wondering how I am supposed to be with this disease if I can't use my controller. Needless to say yesterday was one of the worst days ever. Today though I woke up and remembered that "his mercies are new every morning" God is good even in the midst of difficulties and trials. Praises he is great name! Mouse down
Tuesday, October 25, 2016
Quick trigeminal neuralgia update.
I should post a short update on my right hand and the effects of my trigeminal neuralgia medication. Today my right hand is a little better than yesterday, still not back to where it was a week ago but I'm able to function on my PC and my iPad. That makes me glad because yesterday I was feeling even more isolated since I couldn't comment on Facebook anymore. Now I can with my voice software. Theoretically I can run my computer with the voice software but in practice that is not true. I still need to use my right hand to move the mouse and occasionally my computer get stuck and I have to reboot it. Logging back in is pretty difficult but I think I can do it now again.
Monday, October 24, 2016
Two Pet Morning – right hand is a little better but not much.
Our son Tom and his dog Atlas were here for this weekend. He is staying through today and going home later tonight. This morning Macy was sitting on my hip and wanting me to scratch her head and chin. While I scratch your head I called the dog up in the jumped on the bed and laid down with his back toward her. I could scratch his hip and alternately scratch your head so it was a two pet kind of morning. My wife called in sick because she was up most of the night Coughing. Because she was here Atlas stayed on the bed because he likes her and come for their so I got the benefit of both pets at the same time.
I been on the Tegretol for my mouth pain for four days. Yesterday my hand was a little better but not much. Today is a little better than yesterday so I'm hoping if I just wait my body will adjust of the Tegretol. Who knows though. Thank you for your prayers and thoughts.Two Pet Morning – right hand is a little better but not much.
I been on the Tegretol for my mouth pain for four days. Yesterday my hand was a little better but not much. Today is a little better than yesterday so I'm hoping if I just wait my body will adjust of the Tegretol. Who knows though. Thank you for your prayers and thoughts.Two Pet Morning – right hand is a little better but not much.
Saturday, October 22, 2016
Trigeminal neuralgia – October 2016
Last month it I had mentioned my pain from the trigeminal neuralgia the had returned. Over the interceding weeks it just getting worse and worse until the pain was back to a 10 out of 10 when I drank or ate anything. My wife called the neurosurgeon and they recommended we call my neurologist to discuss medications. The physician's assistant thought that since I had the procedure perhaps I would not need as large a dose of medications and I could avoid some of the side effects that effectively use of my arms. After reviewing my medications that I had we decided to try the Tegretol again.
I have been on it for two days now with much lower dose than before. It is helping the pain so that it is tolerable. I'm still getting the dead right arm side effect so it is very difficult to use my iPads or PC. It is almost impossible to use my iPhone unless it is plugged in and I can say "hey Siri". I will try calling the neurologist Monday when he is not very easy to get into see him. Perhaps he has a better medication for me that won't affect my right arm quite as much. The neurosurgeon did not want to do another procedure so soon after the last one. I think you would've went better if I could have communicated to him during the procedure better. As a worked out I had difficulty speaking and I could not nod my head because of the big needle sticking into my jaw. Communication is one of my most difficult issues with MS.
Thank you for all your prayers and I sure wish this pain could be dealt with without costing me what little movement I have in my right hand. I have never said it until now but this latest trigeminal pain seems unfair. I have tried to maintain a good attitude about MS and had trusted the procedure would work good but now I am pretty disappointed. As one of my friends used to say "too bad so sad". I guess I just need to trust the Lord more. Not sure how I am going to feed myself at breakfast. I might just have to wait until Matt comes to get me lunch.
Of course the most serious issue is that I can't scratch Macy's chin like I used to. It's horrible that this kitty has to suffer because of my MS! Poor poor kitty.
I have been on it for two days now with much lower dose than before. It is helping the pain so that it is tolerable. I'm still getting the dead right arm side effect so it is very difficult to use my iPads or PC. It is almost impossible to use my iPhone unless it is plugged in and I can say "hey Siri". I will try calling the neurologist Monday when he is not very easy to get into see him. Perhaps he has a better medication for me that won't affect my right arm quite as much. The neurosurgeon did not want to do another procedure so soon after the last one. I think you would've went better if I could have communicated to him during the procedure better. As a worked out I had difficulty speaking and I could not nod my head because of the big needle sticking into my jaw. Communication is one of my most difficult issues with MS.
Thank you for all your prayers and I sure wish this pain could be dealt with without costing me what little movement I have in my right hand. I have never said it until now but this latest trigeminal pain seems unfair. I have tried to maintain a good attitude about MS and had trusted the procedure would work good but now I am pretty disappointed. As one of my friends used to say "too bad so sad". I guess I just need to trust the Lord more. Not sure how I am going to feed myself at breakfast. I might just have to wait until Matt comes to get me lunch.
Of course the most serious issue is that I can't scratch Macy's chin like I used to. It's horrible that this kitty has to suffer because of my MS! Poor poor kitty.
Friday, October 21, 2016
Phil's History – Illinois Acreage, not fun until somebody gets hurt!
These next stories happened after we moved to my uncles new
acreage south of Wilmington Illinois. It was closer to Wilmington so we were
able to participate in things like Little League and go to the parks there. The
house was quite large and was two stories with the finished basement. John and
I were in a room. Bob ended up bunking with Keith one of the twins. It was not
as fun without Bob making us like the Three Stooges, who were our heroes. We
spent a lot of time imitating them and watching them on TV. For some reason
after we moved to the acreage I lost some of my caution. I can say I was
reckless but I became less than cautious.
We used to play a game called pickle since there were so few
of us. Pickle was where you guarded a base and someone tried to steal the base
like in baseball. If there were three of us, John, Bob and myself, we would
play with two bases and one runner. The person in one was the one who stole the
most bases since John was so reckless he usually won. There was a farm boy who
lived next door and once in a while he would play. When he played we would have
three bases and one runner. This forms the basis for my first story. John was
the runner and he was on the base or the neighbor boy was. You could not hold
the ball but had to keep it moving so the runner had a chance to start something.
I knew as soon as I threw the ball toward the base John was on he would take
off toward Bob's base. He had a "tell" that I knew from playing with
them so often. He faked like he was going to run toward me but I knew he was
going toward Bob. I faked like I was drawing to the base John was that when
instead through without looking toward Bob's base. Problem was I faked Bob out
also and he thought I was throwing somewhere else and was out looking. The
baseball hit him right in the forehead. The ball bounced off his had strayed
into the air about 20 feet. Bob went down like a sack of potatoes. We all ran
over to him and I was so glad that he was not hit in the eye socket or his
temple. He had a huge bump on his four head but I don't think he was knocked
out. We rushed him into the house and put ice on it. Bob was pretty tough and
never got a concussion from it. I fell really bad but not bad enough to keep up
laughing a little bit. We found the ball and it was never round again.
The next few stories are about me hurting myself. For some
reason I have always seem to be good at hurting myself. One time we're playing
I and go seek and my sister Cathy was playing also. Behind the acreage was a
farm pasture with Barb wire fencing. On one end near some woods there was a
tree the cows could get to reaching over the fence. They had pretty much killed
but there was still enough tree there that I decided I could hide in it. I
grabbed a hold of a small branch to pull myself up into a Y in the tree. As I
pulled myself up the small branch of broke and I fell backwards. The inside of
my right arm hooked on one of the barbs and it slit my arm open. It cut through
the skin and the fat layer underneath and expose a little better by muscle but
didn't really cut it. I started running toward the house for Aunt Beverly so
she could help me. As I ran my sister ran up beside me and said what's wrong
what's wrong. I slow down and showed her and she dropped to her knees
screaming. That part was pretty funny. Aunt Beverly said she could so it up
with her sewing kit. I assume she was kidding. She ended up taking me to the
doctor in Wilmington and we found out he was on vacation. So we had to drive to
Joliet and ended up at the hospital there. I can't believe how long all of this
took to stitch me up. I learned then that that's the worst part about hurting
yourself was the time it took to get fixed. I ended up with five or six
stitches and the worst part was he got infected anyway. It took weeks of
working it out with alcohol every day before it healed up.
Another time John, Bob and I had a contest. There was a tree
on the south side of the house. The house and had rustic wood siding that was
mainly 4 x 8 sheets. The seams were covered by the matching furring strip and
stuck out an inch or so. Our contest was we would leap from where the tree was
and see you could come closest to the house. I always suspected that John set
me up because I won. I jumped so far I hit the house and my shoulder on the
furring strip. My whole left arm went numb from the blow. I had a huge bruise
on my shoulder. To this day I am proud that I won but if not sure it was worth
the victory.
I used this injury to get out of gym class, which I really
hated. These gym teachers had a mean streak and I was a pipsqueak so I didn't do
real well. So I got to stay in the gym while they went outside for class. There
was also another student that didn't have to go to gym because he had a
"heart condition". I think his name was Joey Delvecchio. I was worn
not to play with him because of his heart condition. So I sat on the bleachers
happy to read a book. Joey when I got one of those red rubber gym balls. He
proceeded to chase me around and have me with the ball, over and over. If he
had a heart condition he certainly didn't show it that day. After he made me
cry he must've felt bad and stopped. Then he told me we could go sneak into the
janitor's room. I figured it was just another way that he would torment me so I
said no you go without me I'm staying here. He left and I was so glad. I did
see him again until class was over.
My last story from this timeframe was in relation to the
tree fort we built. There was a cool tree on the north side of the house. We
used extra would from the house being built and made a small platform in the
tree. We nailed boards into the side of the tree so we could climb up. We had a
basket and a rope that we used to pull tools and other supplies up. Somehow
this rope got a knot in it. As I was pulling up the basket the not wedged
between the tree branch and a board we had nailed in. I tugged on the rope
really hard to get it passed the board. Instead of the rope hopping around the
board flipped up in the air and it was like a slow-motion. The nail that was
holding it in the tree and did not sticking into the inside of my rest and
poking a puncture hole in it. It wasn't that bad but it went in about an inch.
I decided I needed to put some antiseptic on it and a Band-Aid. I climbed down
out of the tree and went into the house. I went to the bathroom and washed it
out real good. I put some antiseptic cream on it and a Band-Aid. Then I walked
out and was going to go back out as I went through the family room I suddenly
got lightheaded and then passed out on the floor of the family room. I woke up
and I was on the couch and people were surrounding me asking me if I was okay.
This is one of the strangest things that ever happened to me. Not sure why
there was such a delayed reaction. I'm guessing I had adrenaline that I was
running on and it ran out after I treated my wound.
my next series of stories will go back to around
Memorial Day. That was when the crazy things started happening that I will deal
with in my next series.Thursday, October 20, 2016
Phil's History – Symerton Illinois, last few stories.
I think I have one more story that I can share from the older
house. Some of the stories would be a little offensive since John was a little
crazy so I won't share all those. This story was from Easter of that year. We
were brought up Catholic and so Easter was always a big deal in uncle Pat's
house. That year they decided to get a poodle puppy as an Easter gift for all
the kids. My uncle Pat said the kids could name it and they named it Foo Foo
because it was so fluffy and white. This puppy was pretty high strong and we
got it the day before Easter. Easter morning while everyone's getting ready for
church Keith (was blamed) for letting the dog out. It took off with a number of
my cousins trying to catch it. It had rained steady for quite a few days and it
was mud everywhere. Eventually someone caught the dog and brought it back. It
was so muddy it, it had rolled in the mud, and looked like a chocolate poodle.
Of course the dog on it was great fun to run and be chased. I don't remember if
we made it to church that they are not but I do remember the poodle. The people
who caught it were also muddy so I'm thinking we didn't go to church.
Somewhere
between Easter and May we moved to the new house on the acreage. It must've
been around Memorial Day because I don't remember going to school after we
moved. Memorial Day will be significant in a later series and I will call
Phil's history – the crazy years. Right now I will just discuss living with my
uncle Pat and what we did on the acreage for fun. Somehow it wasn't fun unless
somebody got hurt. Not sure why that is.
I
will post more on that later.
Would
probably be untruthful for me not to post something of the next story. Next to
the two-story house there was a local bar and it had living apartment above it.
We used to find also to where things in their front yard on Saturday mornings.
It was kind of a while place it we were told to stay away from it. One year a
magician named Mike came to the little town we lived it. There was a sort of a
community center where he put on a magic act. My cousin Mary was hishis
assistant. We thought he had a thing for Mary but it turned out much different.
While he was there he stayed in the apartment above the bar. I'm not sure when
but he invited myself, John and Bob to come up and watch a football game. John
and I went but Bob chose not to. It turns out this guy was a pedophile. He
showed us a deck of cards that had naked women on them. This was the first time
I had ever seen this type of thing. His goal was to arouse us with the cards
and then molest us with his hand. I started out first sitting in his lap and
became very uncomfortable quickly. I said I had to go and he let me up with no
fuss. I told John let's go but he said no I want to stay because he really
liked the cards that Mike had. John and I never spoke of what happened after I
left but I can only assume the worst. This guy was a total creep. He would be
in his 60s or 70s now. He was a pedophile but not a violent pedophile. Pretty
disgusting person. I always felt bad for John but he had his chance to leave
and chose not to.
Of
course back then this type of thing was never thought of because people only
thought of pedophiles attacking girls. Male pedophilia was not thought to be a
thing and John and I never spoke of this ever again. Personally I always wished
I would cross paths with him again so I could beat his head in. Never happened
and it never could find them on the Internet. Not sure what I would do now if I
did cause pass with them since I am disabled.
I will post more on things that happened at my uncle
Pat's acreage. Those stories will be more funny than this one was.Wednesday, October 19, 2016
Phil's History –stories from when I lived with uncle Pat and Beverly:
As I mentioned before we moved there before Christmas and it was
kind of a tough adjustment.. My sister and I started to get settled in and
adjusted after Christmas. My sister hung out with the girls, Mary and Ruthie. I
hung out with John who was a grade behind me but only six months younger and
Bob who was a couple years younger than us. For me it was like having brothers.
John was a little crazy and always hurting himself or getting into trouble. Bob
was a follower and often got hurt trying to do the things John did. I sort of
fit in the middle. There were also the younger cousins who were twins, Karen
and Keith. They were quite a bit younger so they just spent most time with each
other. They were pretty much opposites. Karen was small, quiet and good in
school. Keith was a big kid and not that bright. Keith often got in trouble for
doing silly things. One time he put a washcloth over the shower drain and
thought the shower would fill up like a swimming pool. Of course the door let
the water out and ran down into the finished basement.
The stories are not in chronological order because between Easter
and May my uncle Pat and the rest moved to their new house they had built on an
acreage near Wilmington. It was a two-story with the finished basement. More on
that later I will go back to the house we lived in when we first moved to
Illinois with them.
The house was an older two-story house, quite large. I shared a
bedroom with John and Bob. There was a double bed and a twin. We rotated so
that one out of three nights we got to sleep on the twin by ourselves. Of
course we always talked a bunch at bedtime and would often get in trouble for
being too loud and not going to sleep when we should. Especially a school
night. We had a game we played where the guy on the twin bed would dive onto
the double bed and punch the people on the double bed through the covers. This
was great fun. One time John was on the twin bed and dove on to double bed
yelling bonsai when he did it. I had coached Bob that we should scrunched down
to the bottom of the bed and get our legs ready for John's attack. When he dove
he landed right on our coiled up legs and we threw him into the air and he
missed the twin bed and thumped on the floor. I'm having trouble dictating this
because I keep laughing. Of course the big bump brought uncle Pat up and we got
our bottoms paddled. John had advised me that you take two or three swats and
then act like you're crying. Then it will stop. This works pretty good except
two or three swats left Bob still crying while John and I started laughing
uncontrollably.
I would often awake in the middle of the night when everything was
quiet. There was no air-conditioning so the windows were open in the summer.
The little town we lived in called Symerton had a grain elevator and the
associated railroad tracks. There would often be a train come through at night
and for some reason I found the click clack of the train on the tracks
comforting.
I have so many stories of that short time that we lived with uncle
Pat and aunt Beverly I'm not sure I can list them all. That spring and summer
we lived with them in the old house and then in the new. In the new house John
and I shared a basement room with bunkbeds and Bob had a bedroom with Keith.
The girls which included my sister were in the upstairs. Without Bob making the
three of us like the Three Stooges it was nowhere near as fun.
Our big thing to do at the old house was to play baseball in the
vacant lot next to our house. That was when I became a Cub fan. Back then they
had only day games at Wrigley Field. These were all televised so we dropped
everything when they were on and watched them on TV.. So mostly I remember the
bedtime bonsai games and playing baseball. My cousins add a set of cousins who
lived near us. This man we usually had enough people all to play some sort of
baseball game. Wilmington and the town we lived in were near the Joliet
munitions plant. Homebase was this artillery shell casing. I thought it was pretty
cool and John told me I could have it. It was quite a joke because it weighed
about 30 pounds. There was no way anyone would want to drag a 30 pound
artillery casing around and that's why it was home plate.
As I mentioned John was a little crazy and the loved Pete Rose and
acted like him, diving head first into the base and do almost anything. One
time he dove back to second base which was a metal lid to something and he cut
his hand pretty bad. We suggested he go home and show at Beverly but John would
not quit playing. He rubbed some dirt in it to clot the blood and we kept
going.
Well that's enough for today I will try to have more
later. ItheTuesday, October 18, 2016
Phil's History – Illinois Part 1 – interesting fifth grade teacher
As I had mentioned in my earlier post
we moved to Illinois to live with my uncle and aunt. This was before Christmas
of my fifth grade year. I have a few stories about going to school in Illinois,
in a town named Wilmington near Joliet. Three of my stories include my fifth
grade teacher Mr. Mattoon. Mr. Mattoon told us that he had retired from farming
near Peoria and decided to teach. Mr. Mattoon was a very tall and well built
man, probably near 60. He was built like a farmer and very strong. Those
factors come into play in my stories.
My first story was not long after we
moved to Illinois. I had grown up in an environment that was totally safe and
secure. I don't ever remember being afraid of anything other than tornadoes and
tornado warnings. People tended to be very cautious about tornadoes. So when we
moved to Illinois I was surprised to hear that there was a sixth grader named
Donnie Beasley, that beat up any "new kids" to show them who was
boss. I worried about this terribly but never crossed paths with him until one
day at lunch I ended up being the last one in line and guess who was the first
in line from the six grade. Of course it was Donnie Beasley. I couldn't see how
he was threatened by a little pipsqueak like me so I just kept my back to him.
I felt a tap on my shoulder and I turned around and Donnie Beasley is in my
face saying you're the new kid aren't you? I stammered out yes and tried to be
friendly and nonthreatening. He told me that he beats up all the new kids and
it was my turn now. At that point Mr. Mattoon joined our lunch line between
Donnie Beasley and to me. Donnie Beasley took offense at this and started
insulting Mr. Mattoon. Not a smart move on his part. Pretty soon it'd escalated
and Donnie Beasley took a swing at Mr. Mattoon. Mr. Mattoon grabbed him by the
shirt and slid him across the hallway floor like a bowling ball. Donnie Beasley
jumped up and told Mr. Mattoon he was coming back with his dad and they would
deal with him then. When they came back Donnie Beasley found out he was
expelled from school and I never saw him again. So my score was one for Mr.
Mattoon. I found out later he was an equal opportunity son of a gun.
I found out later Mr. Mattoon had no
favorites, me included. He was just doing his job when he came to Donnie
Beasley. One day we were told that a kid named Sorenson at thrown up just
outside the bathroom and wouldn't be back that day. Mr. Mattoon told us all not
to worry about it or think about it but just get to work on our assignment. I
was so curious and wondered if it was covered up already because if I smell
that I would start gagging. So I went up to pretend to sharpen my pencil and on
the way back I stopped at the door. There was a window that was higher than me
so I started jumping up to see out of it and see if I could see what was going
on. Court part of it was curiosity. Next thing I know Mr. Mattoon has me by the
throat and is sliming me up against the chalkboard with the razor trade taking
into my back. His face was really red and he said get back to your desk Gorman.
He never really choked me because his hand was so bad he could lift me up
without holding on to my neck. I went back to my desk chastened and never
wanted to deal with Mr. Mattoon like that again.
We must've really lived a
sheltered life in Omaha because until we went to Illinois and rode the bus I
had never heard a dirty joke. There was always someone telling a dirty joke on
the bus and to be honest I never really understood the jokes. One day I asked
one of the kids what is certain bad word bad. His description was so bizarre I
had trouble believing it. Later on I found out there was a girl in our class
who told dirty jokes. I can I can't say understood them and just pretended that
I knew what they meant but I really didn't. These people were about 3 to 4
years ahead of me in knowing about sexual things. Looking back I feel like I
was pretty naïve but I really didn't miss anything.
I have another Mr.'s Mattoon story. It
didn't really include me but it did include one of my friends. In this class
there were two guys who were always in trouble. They both had very unique
names. One was Danny Curl and the other was Keith Korn. Keith was a friend of
mine but Danny was someone you stayed away from because he could be a bully but
usually was not. Mr. Mattoon practiced physical punishment for people who acted
up in class. He had a 2 foot long 2x4 that he would wrap a towel around and use
as an eraser. When it came time for punishment he would take the 2 x 4 out and
paddle the offending party with it. I never felt that but had to hurt, bad. It
was usually Keith or Danny who were on the receiving end. Keith was the class
clown and Danny was just a son of a gun. One day Mr. Mattoon got called down to
the office. While he was gone Danny went over and grabbed the board and threw
it out our second story window. It was an old school and had no screens so when
the windows were open there was nothing there. Danny sat back down and Mr.
Mattoon returned we were all chuckling to ourselves because he didn't notice it
was gone. About 10 minutes later there is a knock at the door. Mr. Mattoon
opened the door and there is a kid, about a fourth grader, with the board and
the huge goose egg on his head. Unbelievable, the board actually had a kid we
gotten out early for a doctor appointment and was walking by. Mr. Mattoon turns
it back and he's furious. He calls Keith rather than Danny because he was just
guessing and guessed wrong. Keith took off running down the hallway and never
stopped. It he didn't come back to school until he brought his parents. Mr.
Mattoon was some how put in line and never administered the punishment.. The
school never renewed Mr. Mattoon to contract. I think he was it a little to
physical even in the 60s.
I
will try to post more of my stories in future blog posts.Monday, October 17, 2016
Macy makes it hard to use my PC!
It seems like while since I posted so I don't want to go another day without something. Today Macy spent about two hours this morning on my lap. When she is up there I'm not able to use my PC at all. Not sure why she became so cuddly. Yesterday sat on my lap for over three hours. It is been a long time since she was currently with me during the day. I did not want to discourage her by budging her off so I just did nothing while she was on my lap. Yesterday of course I fell asleep while she laid on my left hand. Today I fought off the urge to fall asleep but just watch TV until she got up and left. You know the old saying you have to make hay while the sun shines. So you have to cuddle with the kitty when she decides it's time.
I had an up-and-down weekend. Saturday morning I woke up in a good mood and enjoyed the neighborhood trees that are changing color. Sunday the days seemed to wear me out and by the end of the day I was not in very good humor. This disease is taking away the use of my right arm and hand and I was pretty bummed about it. It troubles me how much this disease affects my family as well as myself. Maybe the cat sense that I needed some attention. On my bad days I often pray that the Lord will let me come home but so far I'm still around. I need to trust him more would sometimes I get pretty bummed and wish this was just over. Thank you all for your prayers and thoughts
Here it is 5 PM and Macy has been added again. After Matt got me lunch she jumped up on my lap again for the third time today. The thing is, Matt puts a remote keyboard on my lap table so I can turn my Kindle pages without lifting my hand up to the PC. When Macy jumped up she start on the keyboard and then turned around a few times. And she lay down on top of the keyboard. Somehow she was making it fill my dialogbox up with C. I tried to ignore it in ended up falling asleep. So I'm posting much later that I normally do. She's a sweet kitty but kind of silly!.
I had an up-and-down weekend. Saturday morning I woke up in a good mood and enjoyed the neighborhood trees that are changing color. Sunday the days seemed to wear me out and by the end of the day I was not in very good humor. This disease is taking away the use of my right arm and hand and I was pretty bummed about it. It troubles me how much this disease affects my family as well as myself. Maybe the cat sense that I needed some attention. On my bad days I often pray that the Lord will let me come home but so far I'm still around. I need to trust him more would sometimes I get pretty bummed and wish this was just over. Thank you all for your prayers and thoughts
Here it is 5 PM and Macy has been added again. After Matt got me lunch she jumped up on my lap again for the third time today. The thing is, Matt puts a remote keyboard on my lap table so I can turn my Kindle pages without lifting my hand up to the PC. When Macy jumped up she start on the keyboard and then turned around a few times. And she lay down on top of the keyboard. Somehow she was making it fill my dialogbox up with C. I tried to ignore it in ended up falling asleep. So I'm posting much later that I normally do. She's a sweet kitty but kind of silly!.
Friday, October 14, 2016
Phil's History – The Sad Years Part 3 (last in the series)
This is the third post in a series of the sad year. I want to be complete/I'm posting it. I will have some other stories in between before I get to "the crazy years". I hope this doesn't end up seeming like "the never-ending story"
I'm not sure when for sure if it was before my grandfather Gorman
passed away or after. My grandmother Ruby McNeal told my dad on the phone that
they were going to get a lawyer and take my sister, brother and I away from him
and raise us. I remembePhil's History – The Sad Years Part 3 (last in the series)r my dad coming to my sister and I and asking us if we
wanted to live with them. We said no in the strongest of terms. Neither of us
wanted to leave Omaha but as it turned out that is what happened. We tried a
nanny/housekeeper but that was too expensive and my sister and I really didn't
bond with her. I still feel a little guilty because part of the reason we
didn't like her is that she was a huge black woman and we were intimidated. She
was very kind but rather loud and pushy.
While we were in Omaha, after the nanny, my sister and I were old
enough to take care of ourselves. My sister became the caregiver for my brother
who was less than a year old. She was quite attached to him and my dad was glad
there was someone to take care of him. He depended totally on my sister. This
came into play much later but that is a story for another day.
So what was after my grandfather's passing and before Christmas of
that year my dad sold the house and we pulled up stakes and moved to Illinois.
One of my dad's brothers, Pat had moved from Fairmont to Wilmington Illinois
which was near Joliet and on the Kankakee River. He was a president of a
Savings and Loan there. Even though they had six kids already they took us in.
Part of this was so that Beverly and uncle Pat could watch over us and also was
to get us away from my grandmother McNeal's attempts to take custody of us. I
doubt if they ever really knew where we went to.
There was plenty of good and some bad to go with living with uncle
Pat and at Beverly. Beverly was not a nurturing person. She was pretty harsh as
was uncle Pat when he was home. To their credit they did not show any
favoritism toward us or their own children. They treated us all the same. That
being said it did lead to more spankings than I had been used to growing up.
Cousin John had little crazy streak in him and I would get in trouble trying to
keep up with him. Poor Bob was a few years younger and always got hurt trying
to keep up with cousin John. It was during this time that I became a Cub fan.
They only play day games in Wrigley back then and their own games were always
on TV.
My sister and I did not really enjoy the move at first but I began
to appreciate having cousins near my age. My sister spent time with the older girls
Mary and Ruthie.she also continued to be the caregiver for my brother Joe.
One of my strongest memories from that time is how sad I was at
Christmas. My dad could not get there until after Christmas and we really
didn't get many gifts because money was tight in my uncle Pat's home. My
cousins really didn't get a lot and then when my dad came it was a little
awkward because we got some pretty cool presents usually. I got a Star Trek
Enterprise model that had lights in it. I wasn't able to put it together myself
so I had to wait for my dad's next visit so he could help me. I ended up not
waiting and trying myself.. I got it put together but I used to much glue and
the lights never worked correctly. It was pretty cool though and I would
pretend like I was going from one planet to another star system just like on
TV!
Well that's enough for today I will post more later.Wednesday, October 12, 2016
Phil's History – Omaha The Sad Years Part 2
This is another difficult post I have been putting off for a very long
time. My previous posts were on my family and the early years in Omaha that
looking back were Ideal. This post will be about what happened after my mother
passed away. I have thought about it over and over I realize it is still
painful to this day. I am 59 now in this happened when I was 10. I have missed
my mother terribly all these years and wish she could've met my wife and my
children. She was a very loving person. So here I go:
my mom passed away in the fall not long after I started fifth grade. I
remember a little bit about the funeral. My dad chose a beautiful blue coffin
because my mother's favorite color was blue. I have to admit the coffin was a
beautiful piece. I don't remember much about the funeral but remember having
difficulty going up and seeing the body. It still did not feel real. During the
funeral my sister and I had a small bouquet of tiny red roses that we put on
her coffin before they laid in the ground. My mother loved red roses and I'm
glad our dad chose that. It made us feel close to her even though by then we
knew she was gone.
My dad was off work for a while and we didn't go to school during that
time. I don't think it was more than a week but I don't remember. When we went
back my fellow students really never knew what to say except one girl, Kris K
expressed sadness at my mother's passing. The teachers and staff all expressed
how sad they were at my loss and I have to admit it wasn't until I was much
older that I understood what they meant. When I was a child it was hard for me
to understand the words "I'm sorry for your loss".
The hardest
moment for me came a few weeks after we went back to school. We always carry
our lunch in a sack or lunchbox. I used to eat peanut butter and jelly
sandwiches almost every day. My mother wanted to give me some variety but I
begged for peanut butter and jelly which was my favorite. So for years I ate a
sack lunch and sat with my friends. Once in a while they would have hamburgers
for lunch at the cafeteria and they smelled so good. I still remember to this
day how they smelled.
Tuesday, October 11, 2016
Phil History – Omaha Start of the Sad Years
Well this is the post I have been putting off for a very
long time. My previous posts were on my family and the early years in Omaha
that looking back were Ideal. This post will be about what happened after my
mother passed away. His I have thought about it over and over I realize it is
still painful to this day. I am 59 now in this happened when I was 10. I have
missed my mother terribly all these years and wish she could've met my wife and
my children. She was a very loving person. So here I go:
The first thing I should mention is my mother’s passing. We
know she had been feeling well but there were no obvious signs of a cold or
anything like that. My sister and I were woken up one night and told our mother
was being taken to the hospital and to come say goodbye. She was on a gurney
and there were paramedics there in our living room. My dad told my sister and I
to go say goodbye to her before she left. My sister went over and gave her a
kiss and told her goodbye. She looked so pale and ghostly I was afraid to go
near. They left and we had a neighbor come stay with us. My dad follow them to
the hospital. Later that morning we went to the neighbors house for breakfast.
My sister said my mother was very cold when she kissed her.
Looking back she may a party been gone at that point but we don’t know. To be
honest her death was something of a mystery and her death certificate says she
died of pneumonia. I know she avoided going to the doctor even though she felt
ill in my recent experience with pneumonia makes me think now that that is what
happened. Regardless they did an autopsy and that was what they came up with.
For years I thought it was an aneurysm that was not found in the autopsy but
now think it may have been pneumonia like they said.
Until the autopsy was done it was not ruled a natural death
until it was investigated. That led some people to have wild opinions. One
evening a group of men, neighbors, about five or six of them came over to give
my father support. My sister and I snuck up on the landing of our split for
house and eavesdropped. Their questions made my sister and I think a few of
them had weird suspicions. My dad could barely speak because he was so choked
up in close to crying. He was devastated by my mother's passing, that much was
obvious. There was absolutely no way it was a suspicious death. The police
looked into a possibility that a coworker at a local retailer had given my mom
some medications to help her with her pain in her lungs. That was ruled out but
that was really the only thing that might have been suspicious.
Her coworkers at the retail store purchased all
of her things she had on layaway and gave them to us. I remember a shirt that I
had picked out that was sort of Aqua and blue, that sort of change colors
depending on the light or how you looked at it. I remember wearing the shirt to
was a rag because I loved it so much and it reminded me of her. I will follow
up on some of the things in later posts.I was quickFriday, October 7, 2016
Trigeminal neuralgia update – seven months, not good news.
It has been over seven months since I had my procedure for trigeminal neuralgia. A few weeks ago I started noticing a little burst of what was like an electric shock in my left lower jaw. No real pain but just a little zap. Now it has grown to being painful when I get a zap. It this happens when I drink anything and occasionally while I'm eating. I'm now experiencing some pain after a dozen times a day.
They told me after the procedure, or before, that the nerve may regenerate itself. I think that is happened in my case. Now I have to decide "how bad do I let it get before I contact the doctors again", how long a delay before I call them and they can do it and how is insurance going to look at this?
I'm finding decisions are much much harder to make. I am experiencing more of the cognitive problems that go with MS. Decisions are especially hard and I have trouble following things that I used to be able to follow easily.
Last night was to be a parade for Marion high school homecoming. My wife and I were going to go since my nephew, David, is in the court. Since the rain was supposed to come they change the route and my wife tried to show me on her phone the new route. She showed me the map and I could not pick it up mentally. I ended up not going because the battery in my van is dead again. My wife went.
They told me after the procedure, or before, that the nerve may regenerate itself. I think that is happened in my case. Now I have to decide "how bad do I let it get before I contact the doctors again", how long a delay before I call them and they can do it and how is insurance going to look at this?
I'm finding decisions are much much harder to make. I am experiencing more of the cognitive problems that go with MS. Decisions are especially hard and I have trouble following things that I used to be able to follow easily.
Last night was to be a parade for Marion high school homecoming. My wife and I were going to go since my nephew, David, is in the court. Since the rain was supposed to come they change the route and my wife tried to show me on her phone the new route. She showed me the map and I could not pick it up mentally. I ended up not going because the battery in my van is dead again. My wife went.
Thursday, October 6, 2016
Phil’s history - Omaha religion – repost
While I was reading Psalm 119 this first reminded me of our
Catholic upbringing.
“I have gone astray like a lost sheep; seek thy servant; for I do
not forget thy commandments.” Psalms 119:176 KJV
like a lot of Catholic families we had a wood carved crucifix in a
prominent place. We also had a picture that fascinated me. It was of a lamb in
a snowstorm with a shepherd dog protecting it. I was always fascinated by this
picture and it was explained to me that we were like the lost sheep and needed
a shepherd. Not much more explanation than that.
We were Catholic churchgoers and we went more than just a
Christmas and Easter but I'm not sure if we went every week but we went a lot.
My sister and I were fascinated by the stations of the cross on plaques around
the church. We didn't really understand much of them but we knew the main parts
of the symbology.
What I remember is that most of the service
came to me as "blah blah blah blah blah". What stood out to me was
the reading of the Gospels. This is done in the second half of the service and
my sister and I were fascinated by these Gospel readings. Most of them had to
do with people who needed healing. There were the blind, the lame, the halt,
those with internal bleeding, a man near the pool that the angel healed people
at and also the man on the pallet that was let down through the roof to be
healed.
We would discuss these
stories all the time. We would pretend to have the afflictions we discussed and
we had sort of a list of the things rated by how bad they would be. The worst
thing would be a quadriplegic, the next worst thing would be to be blind and
then the rest were kind of lumped together. Until I got MS I didn't know what
the "halt" would be. I think I qualified for that when I could still
walk but then all of a sudden my left leg was stuck and unmovable.
We knew the Bible was a
very large book and we could never figure out why they only read a few of the
stories and left out the rest. What they read each year would amount to about a
10 page book but we knew the Bible was thousands of pages. When I became an
adult and started reading the Bible myself it was in my mother's Bible which
was a Catholic Doay version. It's writing was similar to the King James and was
in old English. I started reading and found so much more than just a few gospel
stories that were read each year at our church. I would encourage anyone
reading this to pick up a Bible and start reading. I favor the King James but
there are other translations that you might find easier and still are good
translations. That would be the NIV, NASB and I'm sure there are others that I
don't know about.
Looking back in my
childhood I have almost no bad memories whatsoever. The ones I have were very mild
compared to what I had to deal with later life after my mother passed. My
sister and I were very close during those years and it's hard to believe the
changes that we faced after her mother's passing.
My
next installment will probably be the rehash of losing my mother and then my
history will start up from that point. Thank you for reading my blog.Wednesday, October 5, 2016
Phil’s history - Omaha things I missed posting
I had a file pertaining to my upbringing in Omaha between
the first post and the last one. I accidentally deleted it and so this is my
attempt to re-create it. As I mentioned before we had a very good upbringing in
Omaha. A loving mother and father, sister and many friends our age. There were
numerous things I failed to mention because of the deletion of my file that I
thought I posted on my blog.
As I mentioned before I don't remember very many bad things
from that time. There are a few but they seem so inconsequential now. Dogs I
was afraid of, getting yelled at by some teenagers when we were at the creek,
and one in particular that stays with me even now. I was probably eight or nine
and my dad bought me a BB gun. He hunted pheasants a lot and I got to go along
sometimes. The BB gun was not very powerful. You could actually see the BB
leaving the barrel. It had a lever action and you could only cock it once so
you couldn't build up the force like you could with a pellet gun. It had a
strange way of adding BBs. You had to unscrew the end and then slide this
little tab against the spring and then add the BBs to that assembly, one at a
time. It held about 50. Then one time when I was screwing the end back in I hit
the trigger and shot my finger point-blank. It hurt but it barely broke the
skin. From that I concluded this kind had very little force and was just good
for plinking at stuff. I also mention the mulberry tree earlier. In this same
field, quite a ways away, was a very large oak tree. It was so big and thick
that there was nothing that grew underneath and it was an open area.
One day I felt very adventurous and hiked up to the big tree
by myself. We thought it was so far away that we consider this a huge endeavor.
When I came to the clearing under the tree I saw a robin hopping around picking
at the ground. I had shot birds before and they just flew off with no damage. I
drew down on this robin and pulled the trigger. I he hit the poor bird right in
the eye and the BB went through and killed him. First I couldn't believe it and
went up to the bird and tried to help him get up. Then I realized I had killed
him. That was about 50 years ago and I still feel bad about that poor Robin. I
ended up making him a grave, burying him and having a small funeral for him. I
never tried to shoot another bird with my BB gun.
One other thing I had neglected to mention was
the birth of my younger brother. My brother, Joe, was born nine years after me.
He was born at St. Joseph’s Hospital in Omaha. My sister and I thought for a
long time that he was named after the hospital. We wondered if everybody who
was born there was named Joseph. My brother Joe was still a baby when my mom
passed away. My sister and I did help take care of him but mostly my sister.
Since he was a baby at that time I don’t have many stories that include him
until later in life. My sister and I love him very much and were very
protective of him. I’m sure I will continue this series of my history. To be
honest it gets pretty bizarre after my mother passed away But those stories are
for another day.Monday, October 3, 2016
MS and my inappropriate speaking. It's hard to get used to this disease!
I am a little worried about posting this because my wife might get mad at me but it is a good example of how MS as affected me cognitively. I have to accept this because it is part of the MS but it is very strange to me how this works and I wish it wasn't so.
Friday we went to a wine tasting at a nearby Winehouse. It was outdoor and accompanied by a musician. Very nice evening but it was a little chilly. I had on a fleece poncho which some people call it cape and one of my sons laughingly calls it a shawl. It is pretty warm and covers my hands so they don't get cold. I was sitting by myself because my wife and her sister went to get another wine sample. A lady came over to me and commented on my poncho how comfortable and warm it looked. I think most people were a little cold not dressing for the weather correctly. I have trouble talking but was able to move my hand a little underneath the poncho and said you can rub your face on it. Since my hand was moving underneath it it was also moving in my crotch area. This is not what I wanted to have happen or to say but that is what came out. She left quite quickly and I felt very embarrassed. What I wanted to do was lift my right arm up by her face and tell her she could rub her cheek on it to see how soft it was. What came out was so different than what I was thinking I'm still embarrassed today.
When my wife came back I asked her to go apologize to the girl in the striped sweater and she says you mean Robin? I had met this girl a few weeks ago at another event there but he completely forgotten. She also worked with my wife and now my wife was embarrassed. I asked her to go apologize because what came out was nothing like what I wanted to say. Robin took a good-naturedly and said not to worry about it. I still feel bad and later one some other lady came over I wouldn't talk except to say hi. I've got to find a way to just keep my mouth shut unless I can get better control over. I wish I could just say oh well it's MS no big deal but I still feel embarrassed in which I just said and done what I wanted. It is still hard to get used to all the effects of this disease which will never get better and will only gradually get worse.
Friday we went to a wine tasting at a nearby Winehouse. It was outdoor and accompanied by a musician. Very nice evening but it was a little chilly. I had on a fleece poncho which some people call it cape and one of my sons laughingly calls it a shawl. It is pretty warm and covers my hands so they don't get cold. I was sitting by myself because my wife and her sister went to get another wine sample. A lady came over to me and commented on my poncho how comfortable and warm it looked. I think most people were a little cold not dressing for the weather correctly. I have trouble talking but was able to move my hand a little underneath the poncho and said you can rub your face on it. Since my hand was moving underneath it it was also moving in my crotch area. This is not what I wanted to have happen or to say but that is what came out. She left quite quickly and I felt very embarrassed. What I wanted to do was lift my right arm up by her face and tell her she could rub her cheek on it to see how soft it was. What came out was so different than what I was thinking I'm still embarrassed today.
When my wife came back I asked her to go apologize to the girl in the striped sweater and she says you mean Robin? I had met this girl a few weeks ago at another event there but he completely forgotten. She also worked with my wife and now my wife was embarrassed. I asked her to go apologize because what came out was nothing like what I wanted to say. Robin took a good-naturedly and said not to worry about it. I still feel bad and later one some other lady came over I wouldn't talk except to say hi. I've got to find a way to just keep my mouth shut unless I can get better control over. I wish I could just say oh well it's MS no big deal but I still feel embarrassed in which I just said and done what I wanted. It is still hard to get used to all the effects of this disease which will never get better and will only gradually get worse.
Sunday, October 2, 2016
Wild Kingdom animal capture
I'm going to take a break today from the heavy posts about my history. This is a photo my cousin put on Facebook of Marlon Perkins. The editor show called Mutual of Omaha Wild Kingdom. This reminds me of a story I have. There was a guy on the show I think his name was Jim was Marlon's sidekick and did a lot of the actual animal capture. He often used a pole that had a wire thing on the end any good loop around in animals head and control it by pulling the wire tight. This was their humane way of treating animals that needed something. I always called it the wild kingdom animal capture hoop.
When my wife and I were first married we lived in a very small duplex near Mount Mercy College. There was a basement under both duplexes with a wall between them. We rarely saw our neighbor. He knew we had a cat and one time we did see him he said he thinks our cat is trapped in the basement because when he was down there he could hear meowing. Our cat was fine upstairs so we went to the basement. It had an outside entry door and we had only been in their a few times and stored very little down there. I looked around and finally looked underneath the shelves and their staring back at me was a one eyed cat. His other I was a gnarled mess and missing the eyeball. He was missing one ear also on that same side. When I tried to get him he growled at me and I knew he was not friendly. We left the door open overnight thinking you would leave. The next day he was still under the shelves. He wasn't going anywhere. So I made a wild kingdom animal capture loop using a pipe and some rope. I can pull the rope tight through the pipe and slipped it over his head underneath the shelves. When I did this he went berserk. I thought I had the Tasmanian devil on the end of line and I was terrified that he would get loose and attacked me. He growled and he asked and bit in the air trying to get me. I went over to the door and put him outside the door so that only the pipe was in the door opening. I let go of the rope and thought he would run away. No such luck he stayed right outside the door because I think he wanted to attack me. In the daylight he looked even scarier than the did in our basement. That cat had been through some pretty bad wars. I shut the door and waited thinking surely he will leave. After about 10 minutes I open the door and he was still there. I closed the door and got a lawn chair that we stored in the basement and sat down. After a while I checked the door again and he was gone. As I climbed up the stairs of the basement outside I was terrified that he was lurking right above me and was going to attack. I was so glad when I got to the top of the stairs and he was nowhere to be seen. I was so glad I watched Wild Kingdom so I knew how to humanely capture that scary cat.
When my wife and I were first married we lived in a very small duplex near Mount Mercy College. There was a basement under both duplexes with a wall between them. We rarely saw our neighbor. He knew we had a cat and one time we did see him he said he thinks our cat is trapped in the basement because when he was down there he could hear meowing. Our cat was fine upstairs so we went to the basement. It had an outside entry door and we had only been in their a few times and stored very little down there. I looked around and finally looked underneath the shelves and their staring back at me was a one eyed cat. His other I was a gnarled mess and missing the eyeball. He was missing one ear also on that same side. When I tried to get him he growled at me and I knew he was not friendly. We left the door open overnight thinking you would leave. The next day he was still under the shelves. He wasn't going anywhere. So I made a wild kingdom animal capture loop using a pipe and some rope. I can pull the rope tight through the pipe and slipped it over his head underneath the shelves. When I did this he went berserk. I thought I had the Tasmanian devil on the end of line and I was terrified that he would get loose and attacked me. He growled and he asked and bit in the air trying to get me. I went over to the door and put him outside the door so that only the pipe was in the door opening. I let go of the rope and thought he would run away. No such luck he stayed right outside the door because I think he wanted to attack me. In the daylight he looked even scarier than the did in our basement. That cat had been through some pretty bad wars. I shut the door and waited thinking surely he will leave. After about 10 minutes I open the door and he was still there. I closed the door and got a lawn chair that we stored in the basement and sat down. After a while I checked the door again and he was gone. As I climbed up the stairs of the basement outside I was terrified that he was lurking right above me and was going to attack. I was so glad when I got to the top of the stairs and he was nowhere to be seen. I was so glad I watched Wild Kingdom so I knew how to humanely capture that scary cat.
Friday, September 30, 2016
Phil’s history - Omaha the good years part one
Recently I posted about loss of my mother when I was 10 and in fifth grade. I would like to go back further now to the years where we had pretty much a very normal upbringing. The attached photo shows our first house. It was across the street from an elementary school called Oak Valley. This photo shows the house. I joked about it with a former coworker that it was a memorial to the boyhood home of Phil Gorman! She has a son who lives in Omaha and while visiting she went by my boyhood home. That is her in the picture. She used to be a model on the Price Is Right. Just kidding but she could’ve been.
We moved there a little before I started kindergarten. We
were brought up Catholic and my sister started kindergarten in a Catholic
school but when we moved we went to Oak Valley. The years between kindergarten
and fifth grade were pretty much idyllic and so normal based on what was
considered normal then. Our dad worked and was away from home most of the week
traveling Eastern Nebraska mostly. In the summer I got to go with him quite a
bit. He works for a publisher and went around the stores and updated the TV
Guide section. I really enjoy these trips but I think I annoyed him with my
constant fidgeting and questions.
My sister and I had a very simple upbringing during this
time. We had friends our age and when the friends were unavailable my sister
and I were constantly together. Across one street was a vacant field and in it
was the "mulberry tree". We would make hikes to this tree every
chance we got. It was easy to climb and many times we would take a sack lunch
and spend the day there. We often came home with mulberry stains which were difficult
to get out of our clothes but our mother never complained about that. She probably
like the little bit of peace and quiet she got because when my sister and I
were together we often argued like siblings tend to do. There was also a Creek
that ran along the edge of this field and behind our house. Behind our house it
was a cement channel. On the field side of the creek there was a golf course so
the creek was more natural in character. We played in the creek a lot also.
There was an awning out front of the house and we would get
to play out there as long as the rain wasn't blowing toward the house. It was
pretty neat being outside in heavy rain. We also had a fort built on to the
back of the shed where the garage is now. We used to love playing there to.
Other than school all I remember from those years is having fun with my sister
or my friends.
To be continued.Thursday, September 29, 2016
History of Phil – Grandparents Part 2
As I mentioned before my father and his extended family were
from Fairmont Minnesota. My father was the third in a group of four sons of my
grandparents Mark and Marie Gorman. All of my grandparents were
first-generation Americans. My grandfather McNeal was all Scottish. My
grandmother McNeal was Irish. My grandfather Gorman was Irish. My grandmother
Gorman was French. It is her side of the family that I look like. All four of
my grandparents came to this country in the late 1800s or early 1900s. None of my
relatives were here during the Civil War but immigrated due to turmoil in
Europe in the following decades. My grandfather Gorman was the son of a farm
implement dealer in southern Minnesota. My grandmother Gorman was one of 13
children, many of whom were born in France. They immigrated and then traveled
to Minnesota to settle. My grandmother's youngest sister was lost on the trip
over to Minnesota. It was in Illinois and they thought she may have been taken
by the Indians and sold or and wandered off and ended up with a different wagon
train. They never really found out. Her father was a banker and she said he was
the first millionaire in Minnesota. When he died each of the surviving 12
children received a farm. I asked her what happened to it and she said they
promptly lost it in the Great Depression. So much for earthly wealth.
My grandma and grandpa Gorman were kind of the opposite of
the McNeal's. We loved going to visit. We visited them at least two or more
times a year. When we were there we often played with my cousins that were
children of two of my dad's brothers. Two brothers, Jim and Pat, lived in
Fairmont. The youngest Tom and moved out east after college and was a vice
president of Gallup.
Pat had six children, two of which were near my age. John
and Bob. I played with them a lot when we were there. Mostly though we look
forward to visiting uncle Jim and aunt Betty. Their sons were all older
than me and used to tease me mercilessly but I loved the warm environment that
Betty gave out. The girl cousins, Susan, Nancy and Cindy were more my age and
my sister Cathy's age. I found I could tease Cindy but Susan and Nancy were big
enough to hurt me so I left them alone. Later on Amy came along and she was a
cute little thing.
So we lived in Omaha and visited my grandparents in Fairmont
quite often. We loved grandpa Gorman he was so gentle and quiet. Grandma Gorman
raised four boys so she was a little tougher. We love both of them dearly and
grandma Gorman was a fantastic cook. I always got pie when we visited. Years
later she taught me how to make pie!
So for many years I had friends in Omaha near my
age. We also add cousins who were like siblings. This went on and I would say I
had an ideal childhood my mother passed away in the fall of when I was 10. I
will cover more of the years in Omaha and the effect of my mother's passing in
later posts.Wednesday, September 28, 2016
History of Phil – Grandparents Part One
I suppose I should start out my history with some early info
and some things about my grandparents. I was born in May 1957 in Cedar Rapids
Iowa. I am the son of Mark and Geraldine (McNeal). I have a sister who was born
a little over a year older than me, Cathy. My little brother Joe came along
when I was nine so he doesn't figure into the early days very much.
My dad was from Fairmont Minnesota. He attended Mankato
State University for three years. He quit after three years to help out with
his father. His father, Mark, was stricken with polio and lost the use of his
left arm. Since my father was no longer in school he ended up getting drafted
and he was stationed at Fort Leonard Wood in Missouri. On leave in St. Louis he
met my mother and as they say the rest is history. I'm not sure how long their
engagement was but I know my father loved my mother dearly. I admit I was a
mommy's boy and loved my mother so much it's hard to put into words. She had a
soft Southern way about her and she was so kind. I'm not sure how she ended up
being so gentle and kind since neither of her parents were like that. She was a
beautiful person inside and out and everyone who knew her thought the world of
her.
My mother's parents were the McNeal's and they were from St.
Louis. I am told that when I was about six months old we moved from Cedar
Rapids to St. Louis and lived with my mother's parents. One story I remember is
that they stored their furniture in the garage. My mother's brothers were named
Tom and Bob. I'm not sure which one but one of them ran with a rough crowd but
they were smoking in the garage and set my parents furniture on fire. They lost
all their furniture. Later when my sister was ready to start school we moved to
Omaha Nebraska where my dad got a job with the publishing company. My memories
of the McNeal's were never good. I remember being terrified of my grandparents
and never felt comfortable around them. They owned two standard poodles that
looked identical to me. I was told one of them was mean and do not leave my
hands out. It was made clear that if the dog bit me it was my fault. This was
something that made me feel scared all the time.
After we moved to Omaha we visited a few times. We took the
train which was exciting to me to St. Louis and back. We went one Easter and
the dogs ate all of my Easter candy when we were at church. The dog then threw
up. Of course this was my fault and my grandfather yelled at me. I've never
forgotten that. They never came to Omaha to visit us and I know they had problems
with my mother marrying a Catholic. The McNeal's were Protestant and really
objected to the Catholic attitude toward birth control. This was a source of
much friction and they often accused my father relating to her getting pregnant
with me so soon after my sister.
My mother also had a miscarriage and I think was after me.
She didn't have another child until my brother came along nine years after me.
I have very few memories of the McNeal's but I do remember the few times we
visited my grandmother she was so mean to my mom that she was crying. They were
very mean people I do remember that.
I really don't have much to report about them
other than negative things so I will leave off here and pick up my other set of
grandparents in a later post.Monday, September 26, 2016
Hard to decipher posts
When I read some of my posts in my blog and Facebook as well as emails I think what an uneducated bumpkin! My voice software often gets the tense of my words wrong. I never know what's going to show up when I say her or him. It often puts me in instead and I find when I read mine they are very confusing. As one of thank you that you overlooked these things and I am very frustrated that I come across as an uneducated chump. I am educated and I have all my teeth. I have never owned a rebel flag nor had a gun rack with a rifle in my pickup truck. Once again thank you for overlooking these flaws in my posts. Sometimes I want to yell at my software and I do but that doesn't help it. Supposedly I can ask it to spell things. A lot of times even this doesn't work. It cannot hear the V no matter how I do it. I have to type it in. Even though I proofread my things they still come out with errors. Oh well it's the best I can do so I shouldn't whine about it.
Sunday, September 25, 2016
Crazy numbers!
A few weeks ago a visitor who also works at a assisted care facility mentioned that the cost of that one was $5500 a month. I was staggered by that amount. She said assisted care facilities range from $4000 a month to $6000 a month. I think Social Security will be around $2400 a month. I realize now why they tell you to have $1 million or more saved up for retirement per person.
If everything works out perfect I would leave about half of that amount. I don't wish to be morbid but truthful. I would need to die before I was 77 because of my life insurance policy. When I took it out 20 years ago I was pretty sure I could save quite a lot of money after our kids were grown and before I retired. So 77 seems like a pretty good number. The insurance gets more expensive every five years and the cost after that age seem prohibitive. Now I find my work life was cut short by about 10 years. One thing that stopped when I went on disability is the ability to add to my retirement savings.
I'm so glad I have people we care for me in my home. The cost of professional care seem so far out of reach I try not to think about it. My dear wife assures me he will take care of me as long as humanly possible. Course I trust the Lord for everything to work out. If I trusted my retirement savings I would be a basket case.
If everything works out perfect I would leave about half of that amount. I don't wish to be morbid but truthful. I would need to die before I was 77 because of my life insurance policy. When I took it out 20 years ago I was pretty sure I could save quite a lot of money after our kids were grown and before I retired. So 77 seems like a pretty good number. The insurance gets more expensive every five years and the cost after that age seem prohibitive. Now I find my work life was cut short by about 10 years. One thing that stopped when I went on disability is the ability to add to my retirement savings.
I'm so glad I have people we care for me in my home. The cost of professional care seem so far out of reach I try not to think about it. My dear wife assures me he will take care of me as long as humanly possible. Course I trust the Lord for everything to work out. If I trusted my retirement savings I would be a basket case.
Friday, September 23, 2016
One step forward, one step back.
I'm really not sure how to say this. I'm losing the ability of my right hand and this week it is been made abundantly clear that some of my function is gone. When I wake up both my left-hand and right-hand are balled up and difficult to un-curl. I can still do a little bit if I stretch my right hand and keep my fingers flat on the surface. It is getting more difficult to operate my PC manually. Even with the voice software I still have to move the mouse a number of times to post or operated all. Many times it gets confused and won't work with the voice at all so I have to reboot. Logging in is not easy. When I dictate I still have to move the mouse manually To move the text into the blog. That being said I have some successes to report.
I have finally figured out how to stop the mouse after I tell it to move. For a year now I knew how to move the mouse by boys but could not get it to stop. I tried saying mouse cancel, cancel mouse, stop mouse and mouse stop. None of these work. In my frustration a few weeks ago I just yelled stop at it and it stopped the mouse. I have to include the word mouse when I want to move it but I can't include it when I wanted to stop. It really helps on many things now especially Facebook.
My hope is to get something of my history posted by months end. After that I'm not sure how much I'll be able to post. I hope to keep it going but am not sure what the future holds.
I have finally figured out how to stop the mouse after I tell it to move. For a year now I knew how to move the mouse by boys but could not get it to stop. I tried saying mouse cancel, cancel mouse, stop mouse and mouse stop. None of these work. In my frustration a few weeks ago I just yelled stop at it and it stopped the mouse. I have to include the word mouse when I want to move it but I can't include it when I wanted to stop. It really helps on many things now especially Facebook.
My hope is to get something of my history posted by months end. After that I'm not sure how much I'll be able to post. I hope to keep it going but am not sure what the future holds.
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